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Comment by LilyBell*Murphy'sLawLuvsMe on April 13, 2013 at 10:05pm

Have you had a scalp biopsy to try to identify the cause of hair loss. It could be from stress - or lack of proper nutrition due to all you have been through. Also anesthesia can cause hair loss. Also you seem seriously clinically depressed from all you have had to deal with and perhaps an antidepressant might help you to cope a little better. I know it is hard. Very hard. I am so sorry for all you are having to deal with.

Comment by Felicia on April 11, 2013 at 1:15pm

Ok I just read your first post. The first thing I would do would ask myself if I really needed those pills. I would forget about my hair and focus on my inner health. What you are going through sounds terrible and I wouldn't wish it upon anybody.

I changed my diet and the poisons I was sticking in my body and a whole new world opened up for me. Before , I was in so much pain that I couldn't go to the bathroom by myself or take care of my personal hygiene. It was slow recovery but I am here now to tell about it. There is a rainbow after the storm and all you have to do is want it bad enough to make the changes. Right now your hair is a secondary problem. Take care of your mind (thoughts) and body(Nutrition). Be diligent but yet be patient and gentle with yourself. By then, if your hair hasn't already grown back, your mind and body will be in a better place and you will be at peace with yourself "as is".

I wish you peace and serenity (((HUggs)))

Comment by Amy-Rose on April 8, 2013 at 7:42am

This indeed is a place of support, and all of us feel the pain of hairloss no matter how extensive. I'm truly sorry you feel this way, and Alopecia is a hard thing to accept, so trying to stay positive can be grim sometimes. But we are here for you, and know what you are going through, and you aren't alone in feeling the way you do. I feel better when writing poetry, and statements to inspire others with Alopecia, perhaps you could try it too! Read my blogs, I hope that they will make you smile (: x

Comment by Tallgirl on April 7, 2013 at 10:47pm

www.naaf.org has a link to phone support contacts in all parts of the USA. Many colleges have online classes. YouTube has how-to videos and travelogues. Libraries and bookstores have meetings and discussions. Cancer groups may have advice about good wig stores in your area. Online searches can find great hats, scarves and wigs. There are online social groups for gardeners and people interested in genealogy or any other subject. Local parks-and-rec, cultural groups/festivals, cooking or spiritual groups have adult activities and meet-ups. I am 60, underemployed, have alopecia totalis, but seek out fun things and low-cost options all the time. You could, too!

Comment by MeganG on April 7, 2013 at 3:29pm

I truly hope you are feeling better. I am sorry you are hurting and feeling alone. You aren't alone, and I am willing to listen to you. I am new to this site but not new to alopecia. If you'd like to chat, please let me know. In the meantime, I will be praying for you and sending you happy thoughts.

Comment by LaNae on April 7, 2013 at 3:17am

I sense you have some great computer skills, love to communicate, and have precious time. How about volunteering on line? On some of my down days, I add image search words at vineyard.lds.org It is a simple, fun activity that gets the mind thinking of obvious and not so obvious ways a picture might relate to topics. There are lots of other online volunteer options. Some are people learning English as a second language who just need someone to give time to communicate with them. Do an Internet search and you are sure to find something interesting to you. In giving to others, your pains will not be so overwhelming.

Comment by michelle on April 5, 2013 at 8:56pm

Hi,

I'm sorry you are feeling hurt. That was not the intent of my comment. I do wish you well on this journey.

Comment by suffering on April 5, 2013 at 5:50pm

I thank everyone who has taken the time to comment on my post, but I do feel upset Michelle, reading your comment today. I do not know what you mean when you say that I have expectations that you feel cannot be met on this site. I don't know what you feel my expectations are. I am suffering more than words can ever say, and am reaching out to people in this time of crisis for me. Tallgirls comment while I know is meant to try to help, overwhelms me. I am not in a position to try any of her suggestions. I am 54 yrs old, and not well enough to travel, something I have always so loved to do, or enroll in college courses, etc. There are no support groups where I live to help me with what I am going through. Writing annonymously on this site or any others I might find is all I have, but I now feel rejected from even writing on here to reach out to people. I feel so hurt.

Comment by michelle on April 5, 2013 at 4:48pm

Hi there,

I do appreciate that you are having a difficult time. By no means am I minimizing your suffering. Unless you have been through the experience of losing your hair(and in my case my whole body) you don't know how it feels.

I am a clinical social worker so I do come from a place of experience. I worry when I see your post. You have an expectation from this forum that I'm not sure can be met. I do think that individuals are here to support each other. I'm not sure its reasonable to expect ongoing posting. Tallgirl gave some great advice. I would strongly suggest that you get in touch with your family doctor. You might benefit from some individual therapeutic support.

Comment by Debs on April 4, 2013 at 10:37am

I hope you are feeling a bit brighter, Tallgirl has given you very sensible advice, I would start to make some changes in life like she says and people will want to be around you again. Lots of good wishes from everyone on here.

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