I firmly believed I had reached a place of genuine acceptance. A place where it was no longer "Why me? Who is this foreign creature staring at me in the mirror?" but "I am beautiful and I am the same Val that I was with hair". Yesterday evening shattered this impression. I was at Bible Study at church, a place I had not gone in a while. I kept making excuses that really covered up how embarrassed I was and the fact that I did not love the new Val. Last night I decided it was long past time to attend and was so glad I did. The lesson was on Gethsemane and I personally felt that I understood this topic more now. The instructor shared a beautiful poem entitled Gethsemane by Ella Wheeler WIlcox -

In golden youth when seems the earth
A Summer-land of singing mirth,
When souls are glad and hearts are light,
And not a shadow lurks in sight,
We do not know it, but there lies
Somewhere veiled under evening skies
A garden which we all must see -
The garden of Gethsemane.

With joyous steps we go our ways,
Love lends a halo to our days;
Light sorrows sail like clouds afar,
We laugh, and say how strong we are.
We hurry on; and hurrying, go
Close to the borderland of woe
That waits for you, and waits for me -
Forever waits Gethsemane.

Down shadowy lanes, across strange streams,
Bridged over by our broken dreams;
Behind the misty caps of years,
Beyond the great salt fount of tears,
The garden lies. Strive as you may,
You cannot miss it in your way;
All paths that have been, or shall be,
Pass somewhere through Gethsemane.

All those who journey, soon or late,
Must pass within the garden's gate;
Must kneel alone in darkness there,
And battle with some fierce despair.
God pity those who cannot say,
"Not mine but Thine"; who only pray
"Let this cup pass," and cannot see
The PURPOSE in Gethsemane.

Although I feel that I am now able to say "Not my will, but thine be done" I am still upset. I was shocked that when explaining to the instructor how personal a lesson this was I totally lost it. I don't think I had cried that hard since my hair has fallen out. I know I needed to do it, but it still shocked the heck out of me. Yesterday, and most of today for that matter, have been really hard. I no longer pray that my hair return, I pray for the strength to deal with whatever comes from this, but I still want my darn hair back.
I have been really angry today - angry that here I am at eighteen forced to come to love myself again. I feel that I have just come to understand and love me for being me and here I am struggling to do that all over again. I am so thankful that I am not sick, and yes this offers me solace, but sometimes I feel that by repeating this to myself over and over I am not fully valuing my feelings of hurt and loss.
I know that each day gets easier, and for the most part I love not having hair, but I really surprised myself with how much it hurt to last night to talk about being bald.

Views: 8

Comment by Mary on December 4, 2008 at 7:31pm
Val,
You are beautiful, but being an alopecian is not a choice you made. I truly understand your pain and I give you hugs. I am mad for you. You know you will get through one day at a time and have ups and downs. It's a grieving process, very much like death. I have discovered that you can be doing fine and then just like that you are an emotional wreck. Don't be surprised about your hurt. You have a right to be hurt even though your are so brave and have "accepted" this cross you bear. Damm, if you feel like crying, cry it out! You have to get through it so you can get past it and crying is an outlet. I cry sometimes still. And I am just the mom of an 18 year old son who developed universalis last year. He recently has accepted this cross too and has become a better human being having gone through all this. I will keep you in my prayers too. Just call me little mom.

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