Alopecia World
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Acceptance
As I move on down path of being AU I try to keep up to date on the various Alopecia Websites and I was pleased to read about one young lady who had AU showing lots of re growth. It is amazing that she has so much hair again and I hope that she gets all of it back and it stays with her for ever. What I hope for more than that though is that she is not let down by the dreaded Alopecia. She seems so happy with her re growth and I really hope that she is not hurt by a turn in fortune. We all know from experience that hair can come and go with this complaint; it really is such an unpredictable problem
As for myself, I am quite happy completely hairless and only feel concerned about Alopecia when I get the odd burst of hair in a small patch (it’s only every now and then). It only stays a short while and then falls out again which is good as I am really pleased with my hairless image.
It is the falling out that is the bad part of Alopecia and I really hope that my hair just simply stops growing. I am really happy hairless and would not give it a second thought if I remained hairless for ever more. What I really don’t want is to go through the coming and going bit again. The odd bit of hair every now and then is acceptable but I dread having lots of re growth and then have lots of it fall out again.
Acceptance is a wonderful thing. I have accepted how I am now and my only wish is to stay as I am.
As for myself, I am quite happy completely hairless and only feel concerned about Alopecia when I get the odd burst of hair in a small patch (it’s only every now and then). It only stays a short while and then falls out again which is good as I am really pleased with my hairless image.
It is the falling out that is the bad part of Alopecia and I really hope that my hair just simply stops growing. I am really happy hairless and would not give it a second thought if I remained hairless for ever more. What I really don’t want is to go through the coming and going bit again. The odd bit of hair every now and then is acceptable but I dread having lots of re growth and then have lots of it fall out again.
Acceptance is a wonderful thing. I have accepted how I am now and my only wish is to stay as I am.
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Comment by Mary on April 15, 2009 at 7:38pm
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Ray, you said it all! Acceptance is THE most wonderful thing.
I accepted the loss last year of every single hair on my body, and have assumed it's permanent since I'm AU now. Part of me doesn't want it to come back because then I'd have to start the whole damn process over again of watching, wondering and worrying whether new bald spots were going to appear. I'm one big bald spot, and it's fine. In some weird way I think I'm actually proud of my "specialness", and might miss it.
BUT, in just the past few months, I've developed hair in my eyebrow region, and my nostrils - no where else. I'm actually plucking eyebrow hairs because they're below my tattoos! It's so strange to pluck hair after having none. And, yesterday I saw two tiny hairs sprouting on one eyelid (I can only see them with a magnifying mirror). So, predictably, I'm getting my hopes up that I might get my brows and lashes back. I HATE the fact that I'm even thinking about it again. It's undermining my acceptance!
How have the rest of you dealt with this?
Mary
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Thank you, Carmen. Once again, the wonderful thing about this site is the sense that we're not alone! Where else could I find another soul who really understands how I feel staring at my two barely visible returning eye lashes? My husband, understanding though he's been, doesn't get at all what seeing these new hairs is doing to me.
Yes, if it doesn't come back, we can't feel the loss again. It's just part of this damned disease. But, as I constantly remind myself, it's not life-threatening.
Mary
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Comment by Ray on April 20, 2009 at 4:30pm
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One of the great things about people is that they bond with others in a similar position.
It can be painful when you first get Alopecia but the great benefit is that you find others who are also experiencing having Alopecia but perhaps they are more established with the problem and the bond you form with them helps you to deal with the problem. In turn you then assist others further down the line.
An interesting cycle!!!
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