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Comment by Clara S. on March 17, 2011 at 5:59pm

Trish, I myself lost all of my hair very quickly less than a year if you count the time from having some hair to none at all. I've had a bald spot or two for the last ten years or so but only got help about two years back, which started with injections. After a while, it felt like a game of chasing those spots, as the injections would fill out some spots but then new ones grew back elsewhere. However I remember feeling at one point that it was working. Then I moved to Singapore, changed doctors and this one recommended DCP, stopped my injections and then within 3-4 months, I lost EVEN more hair to the point where I had just HUGE patches on my scalp. And then it got so bad, he put me on Oral steroids to combat it. That worked up to a point, when I weaned off it, I had a full head of hair growing back but then I lost it all again so it was frustrating but at that point, I realised that I didn't care for treatment anymore. Anyways, like all is saying above, not trying to scare you but that's been my experience. I know some folks get good results and it stays that way but not for me.

Comment by Clara S. on March 17, 2011 at 5:49pm

Hey Trish, when I finally went to see a dermatologist for my AA, I got those injections too in my spots. It filled in but then it started falling in other places too and creating bald spots elsewhere. After a while it felt like I was playing a chasing game with my scalp and the injections. This was all within 8 mths before I stopped the jabs because when I moved to Singapore, the doctor here recommended DCP instead, which did nothing for me and my hair loss just got worse and finally he put me on oral steroids which caused all my hair to grow back in but when I was weaned off, I lost it all again! So, like the above, not trying to scare you because I know everyone has different experiences but that has been mine. All of this happen in a span of just just a year. Although I have had one or two bald spots that always grew back for the last 10 years...just progressively worse towards the 8th year or so..

Comment by Michelle on March 17, 2011 at 9:55am

Trish, It is an emotional roller coaster, isn't it? The thing about alopecia is that it is so unpredictable, and that can be so frustrating. My AA started over a year ago (Dec. 2009/Jan. 2010). Last summer, my hair was thinning all over, and I had a large bald spot. Then, it seemed to improve some. By November, I had lots of new spots, however they were much smaller than the initial spot. Plus, the first spot was growing back in. And now, I don't seem to be losing as much hair and I think it might possibly be thicker than it's been in over a year. When, it was at it's worst, I was starting to panic. I did buy a couple of head coverings. This was a comfort to me, that if I lost it all or most of it, I had something cute to put on my head. Nothing is wrong with the bald look-nothing at all! I just wasn't feeling that brave and having these in the house, made me feel like I had some control in all of this. I hope this helps! Take care!

Comment by manuel j. torres on March 17, 2011 at 3:15am

hopefully this gives you some type of hope. my best friend (female) had aa about 5 years ago and showed me her bald patches on her head and they were growing rapidly every week. she started going to see her doctor which started treating her with cortisone shots every week for a month and every two weeks after it completely grew hair back. till this date no signs of patches anywhere. that was the first time i ever seen or hear about aa. i then developed it about three years now and I'm still fighting it. i do believe that the doctors are so concerned about the side affects (rightfully so) of the cortisone that by the time they decide to go fully with the treatment is too late. the reason why new patches are forming else where is because the treatment is working. is like the aa is runing away from it sort of speak.

Comment by Trish on March 16, 2011 at 6:50pm

Hi George, Thank you for your response I believe that Alopecia in itself aside from being due to chemotherapy or some other medical related issue it is due to a bacterial/ or viral infection..I had a severe infection in my mouth about 2 weeks prior to hair falling out..I now and since my hair started falling out had skin issues on the bottom of my feet, face, and that infection in my mouth so I feel the same way...I have had every test inder the sun and everything is negative no other auto immune disorders nor ever had skin issues...It is awfully weird that I still get the rash on my feet, but I also have hyperhydrosis so who knows if there is a correlation..Just curious, why do you think shaving made it worse and in what way?

Comment by George Ortiz on March 16, 2011 at 6:19pm

not to scare you but you did ask, unfortunatly the answere is yes, you can lose all your hair within one year.I lost all my hair in about 1 month. In 2006 I started getting small ithing bald spots on my face after finding more on my scalp i went to a dermatalogist, I began aggressive cortisone shots directly to butox as per doctors decission ounce a month, after about 7 months about 95% of my hair was back, the day before my next scheduled shot, I developed literaly in one day a severe allergic reaction to the aggressive cortico cortisone shots i had been recieving , this is according to the doc. I developed a severe rash all over entire upper torso arms ect.. doc discontinued my shots abrubptely, and within 1 month all my hair fell out.. Personally if I were you I would start making drastic life changes,diet changes tons more sleep hot cold baths and never stress out do sensible things to shocked the body out of its current destructive pattern its on, also dont shave head , my AU seemed to get worse after shaving head bald or maybe thats when i gave up somewhat,I believe that AU is a bacterial or viral type infection my belief is based on a the marshal protocal studies google marshall protocol for more on those studies. Hope this helps you in some way.

Comment by Trish on March 16, 2011 at 5:05pm

Thank you so much to all of you for your responses..

Comment by Mary on March 16, 2011 at 10:48am

Trish, I don't want to scare you, eithr. But I went through 7 years of small, wandering bald spots, with regrowth in the area of injections. Then it changed. What you describe is what began to happen to me 4 years ago. I progressed rapidly from spotty (hideable) AA to large bald areas, to AT (whole scalp bald) to AU entire body hairless, between around July 2007 and January 2008. You can see photos on my first photo page on my profile of the way it looked the night before I shaved it off in January 2008. By April 2008, I didn't have a single hair anywhere. Good luck, and just remember you're not alone. Also, please remember you will still be you if you ever do lose all your hair.

Comment by cindy Babs on March 16, 2011 at 9:23am

hi trish. you can have diffuse hair loss all over in addition to the formed spots. try not to despair. you may have regrowth one NEVER knows. just try to focus on accepting your situation now. the future is unpredictable with this condition. you are beautiful and strong. it will get bettter. :)

Comment by Pat Latina on March 16, 2011 at 6:02am

Isn't it funny how Alopecia is so unpredictable. I had just one tiny spot in the crown of my head when I was in my 20s. I never paid it any attention cause I use to think it was just the way my hair grew. So I would blow it out and always made sure that small spot was covered. Years went by got married and when I gave birth to my son (now 15) I noticed my hair was a different texture and the side of my hair was receding on the sides. So thinner and thinner and further back male-baldness(didn't know then it was called this, lol!). Went to the Derm and he confirmed Alopecia. Shots OUCH, Rogaine, Creams - I even used Topix to hide it. I remember thinking if I never would have noticed I was losing my hair I would still have it. lol!! I know that's not true, but it was what I thought. You know the minute you notice something, it gets worst. And it did. Finally had to cover it us with a topper, it worked but everytime I had the topper replaced it pulled hair out and my topper became a full-head topper (wig) glued and taped on my head. It worked for awhile, but then I notice body hair was gone. The worst was when I woke up one morning and notice I had no eyebrows. AU quickly came on the scene. Since then I've had my eyebrows tatooed and I wear a Freedom Wig which I love. But like I said in the beginning "Alopecia is unpredictable!" This is my story.

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