Comment by susan williams on January 15, 2011 at 9:50pm

thank you for your kind words, really need them now and yes i do need to get away, but i am just at all time low only had stress related alopecia since october and at the stage where head hurts and can't bear anything on it for longer than an hour....flight will take 5 hours then will have to appear happy...how can i do this, could cope with the hair loss if i could wear something.....just going around in circles, thought i was getting better :(

Comment by susan williams on January 15, 2011 at 10:22pm

noooo i want to keep it covered, very cold in europe, but how to is the problem? ohh well perhaps i will feel more positive tomorrow....and thank you for caring x

Comment by Tallgirl on January 16, 2011 at 2:16am

Some beverages keep away both pain and cold...

Comment by Norm on January 16, 2011 at 6:41am

Now c'mon, Sue, what's all this about not being able to go on a freebie? Are you mad?? (well, you're talking to us, so maybe you are...) :)

Did you get out at New Year? I bet you did.... so what's the difference between that and the Prague trip, besides the distance? In fact, it's even better, cos it's highly unlikely you'll bump into anyone you know - so what do the thoughts of people you'll never see again matter? Who cars how much or how little hair you've got, when you've got an opportunity like this? Do you really want to be looking back in a few years, and think "I wish I'd gone"? It doesn't matter whether you shave your head or not - the important thing is that your life doesn't stop happening. Come on, you only get one shot at this "living" malarkey (as far as I know... might be wrong!), so make it count - no remorse, no regrets!

As for the bullying.... you need to turn the situation around and take control (cos that's what's at the root of most people's problems). Start by keeping a record of what was done or said and when. Then, when he/she starts pushing you around again, ask if you can have a word in private, and lay it out what they're doing to you. Tell them that unless it stops, and you start getting some respect, that very soon you're going to snap, with the outcome that you'll most likely bury the office scissors in their neck - and you won't be held accountable, because you'll have your diary and maybe even an email trail to prove you were being bullied.

Well, OK, maybe the scissor thing is a bit extreme, but that sort of thing does happen... peeps do get pushed too far. What I'm saying is, get some proof, and start pushing back. Stop being a victim! After a while it becomes entrenched in the psyche - both yours and this other person's - and then it's very, very hard to escape without doing something that's waaaay out of character. You'll feel so much better about yourself and the way you see the world, and you'll have stood up for yourself. The hair thing might not improve, but hey, that's just hair - a very small part of who you are.

Now get those bags packed ready for the Big Gig, and bring us some rock back from Prague (whaddya mean they don't have it?? They do in Blackpool....) :)

Comment by caroline knight on January 16, 2011 at 7:40am

hi sue i found the answer to covering my head was a 'buff' its so comfy n gud in hot and cold wather! i have several 'original buffs' in ladies and childs they come in loads of nice colours and stay on nicley u can get them on line jus type in buff headwear or out door shops for about £11 or 'jml' do a version on line or sum shops for £5 i wore them for 5mths and now after trying 5wigs i have found 1 that is really comfy even tho my head is really sore the wig is a pettete size frm 'sentoo' gud luck n big hug u will eventually start 2 feel beta wiv time X

Comment by caroline knight on January 16, 2011 at 7:46am

pls dont feel 2 alone were all in the same boat (i have alopecia universalis for 7mths and im recently feelling beter able 2 cope i never thought i would! but alopecia world has really healped me thru sum very dark days your not alone every1 on alopecia world is here for you!!! :)

Comment by Bald and Fabulous AKA Terri on January 16, 2011 at 11:27am

Never feel bad or guilty for venting here. That is what we and this site is for. Remember you are beautiful regardless of your hair. Dont let the lack of hair change that. I have been where you are just a few months ago. Crying every morning about how to "hide" cover up my head. Finally I just shaved it off, and I did feel alot better (altho it did take afew days to get use to my reflection) The one thing alopecia does for us, is it teaches us to be a stronger and more tolerant person. Ignore the toxic people, I like to remind myself that their lives must be pretty dull if all they can do is talk about my lack of hair. And do what Norm mentions and record anything the bully does. Have your proof to show your bosses. Make it clear you are NOT going to tolerant their behaviour anymore. I have afew wigs but I find Im more comfortable wearing silk scarfs (I buy them in brilliant colours which also helps to cheer me up and express my personality).

Dont even think about not going on your holiday (especially a free one and to Prague!!!!) A holiday is perfect to relax and be yourself. Its a great way to go out and express yourself and not worry about what people think, you are not going to see them again anyways.

Stay strong and remember you are beautiful HUGS>>

Comment by Bald and Fabulous AKA Terri on January 16, 2011 at 11:34am

I should also add in the silk scarfs not only are the light and comfortable. I can wear them all day, even on days that I have headaches. Altho I never experienced the pain that some get with the hairloss, I did find the silk comfortable on days that I use to get my injections. I find them to be warm in winter months and I live in Canada. Current temp -25c.

Comment by Mary on January 16, 2011 at 1:34pm

Check out my video on Alternatives to Wearing a Wig about how I tie scarves. Don't let lack of hair stop you from enjoying life and having experiences. I couldn't wear wigs, though I tried 6 nice ones. Others on AW do fine with them, but if you can't, just wear a scarf or buff and hold your head up and smile. I've found that if I act like there's nothing out of the ordinary about me, other people act the same, for the most part. In other words, fake it 'til you make it. As my t-shirt says "Yes, I'm bald...get over it!"

Comment by Angie on January 16, 2011 at 9:39pm

Hey Sue
I know things are hard sometimes, I'm going thought it too. I'm going to buy my first wig this Thursday. I have a pea head and I know it's going be hard. I wish you well, keep your head up. Go find a nice sexy wig and go on your trip! you will be happy you did. Keep you computer locked on this site and keep us updated. God Bless

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