Hi All,
I was wondering if any one would share there experience with alopecia areata with me. Feel like I am the only person who has this terrible disease.
Thanks!

Views: 16

Comment by Tallgirl on March 18, 2009 at 10:42pm
Click on "members," and you will see that you are not the only one. We have all found each other here, and there are many in the world who don't even know of this site or use computers!
Comment by Catherine on March 19, 2009 at 2:52pm
Hey Katie, I'm almost 19 and have had Alopecia Areata and I still have my hair. Right now there is only two spots and they're easily covered with a pony tail but 2 years ago I had about 7 spots and it was so hard to cover them up. Every year is different. My grade 12 year my hair all grew in for about 5 months and then 4 spots formed a few months before graduation, once again I could cover them up with a pony tail or depending on the weather could wear my hair down if it was nice and not windy. I never know from week to week or month to month how much hair will fall out, I haven't had to get any hair pieces yet or a wig but I know eventually I might have to come to terms with that and accept the fact if I do have to. How is your Alopecia doing? I still do everything the same as before I had it (which I found out when I was 13 when I got my first spot) the only thing I miss and that is very frustrating and hard TO do around people that don't know is go swimming. It's the one place where your hair is wet and thin and everything shows! Only 3 people in my life know about my alopecia, which sounds horrible I know but I haven't got up enough courage yet to tell anyone else and for the time being I haven't had to since I've been able to cover it, but the day will come when I know I'll have to face the world, which the WORLD isn't what I"m afraid of, it's my own world.. Family members (extended), friends from high school, University friends, town members, other employee's, etc.
Comment by Billie on March 20, 2009 at 4:36pm
I will gladly share with you. Unfortunatly, AA is a never ending cycle for most who have it.
I have have had this crazy mess for over 17 years now. Been totally bald 4 times since the age of 25.
I posted a blog about my whole experience. " AA history /Writing it down" I still battle it daily!!!! As my faith grows so does my confidence in myself and others.
Hugs! and Keep your chin up, doll - you are still as wonderful as you ever were!
Comment by xxx on March 21, 2009 at 11:45am
My hairdresser discovered my alopecia in August and the spots have been getting bigger ever since. It is great to read that others also fear the wind. I am able to do a great comb over job now but fear that will soon be difficult. I have very little hair the left side of my head, a large spot on the back right side which is creeping towards the front , one on the very top of my head, nothing behind both ears and a new small spot right at the back. When I write this all down I realize how much I am having to cover. I am 47 years old and this is my first bout with Alopecia. Will my hair grow back? I have been to a dermatologist and use the ointment prescribed, but it leaves my hair greasy so I am not keen to use it during the day. I apply it in the evening when I know that I will be staying in. I have also lost my eyebrows and they are now growing back because of the ointment I think, or not. Who knows. It is really good to hear that I am not the only one with this. I have actually had people ask me about the chemo. They think I have cancer.

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