I wanted to ask everyone to please help find a cure for our disease.
Please fill out a questionaire and donate a blood sample to www.naaf.org/site/PageServer?pagename=research_registry
This is our hope for a cure.
Happy New Year!!!
Jeffrey

Views: 4

Comment by Connie - Chris' Mom on January 4, 2011 at 9:12pm
I registered my son and they have requested him to participate in the Second Tier process. I'll need to call the dermatologist and ask him to complete his part and then let my son know that he "gets" to have more blood taken. But it'll be worth it to do our part for a cure!
Comment by JeffreySF on January 4, 2011 at 10:12pm
Thanks to you both for helping!
Comment by Gloria S. on February 5, 2011 at 9:47am
I read this and decided to fill out the form and my daughter was contacted for the 2nd tier. She will be participating. Thanks Jeffrey for mentioning this...I hope more will consider!
Comment by JeffreySF on February 5, 2011 at 11:17am
Thank you for participating.

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