JeffreySF's Blog (52)

11 Years of Alopecia

Hello All,

What the journey we go through with this thing called alopecia areata.

I've just returned from the www.naaf.org conference and want to let you know that once again I had another, yes another wonderful experience of my life! 

I celebrated with old friends and met new friends. 

Thank you all for you being you!!!

Love and hugs!

Jeff

Added by JeffreySF on July 6, 2018 at 2:35am — 11 Comments

Chat on Alopecia World

Hello All,

There is a Chat function on Alopecia World that seems to be underutilized for direct communication and support.

I would be happy to be a host on a weekly basis. Lets chat and get to know each other.

Anyone interested?

Ideas or suggestions are welcome!

I've found this sort of communication to be quite helpful in the past. It can be fun too!

All the best to all!

Jeff

Added by JeffreySF on March 28, 2018 at 1:30am — 10 Comments

10 years of Alopecia

Hi Friends and All,

It's official, Ten years and counting since I found that little patch on the left side of my head.

Whirlwind of activity since my discovery of Alopecia Aerata.... The online chat here on Alopecia World and attending the www.naaf.org Conferences every year!

I'm happy to say that i've made peace with my disease!

Best of luck to all!

Shout out if you want to!

I've got great ears!!!…

Continue

Added by JeffreySF on July 17, 2017 at 10:00pm — 1 Comment

Year 9 with alopecia

Hi All where does the time go?

It seems like it was yesterday that i found that first little bald patch on me...

I'm 2 days into my 9th year with alopecia.

While it wasn't an easy transformation I'm making the best of it. Thanks to all here and www.naaf.org 

I've spent many hours over the years on Alopecia World. Helping myself and others to the best of my abilities. I've thoroughly enjoyed all the time I spend…

Continue

Added by JeffreySF on July 8, 2016 at 12:00am — 6 Comments

Happy 8th Anniversary Alopecia

Hi All,

Oops I'm late again.

Okay, it's been 8 years since I found that little bald spot on me. July 5, 2007

Big Rollercoaster Ride for sure those first couple of years. The ups and the downs and all the sideways.

Thanks Alopecia World Members of past, future and present!

And thank you www.naaf.org

I'm enjoying the ride these days but when does the ride end?

 Thanks Everyone!

Added by JeffreySF on July 22, 2015 at 9:00pm — 1 Comment

Cal-NAAF-ornia-Dreamin'

Hi All,

Who's going to the NAAF Conference this year?

Hoping to meet lots of new people there.

NAAF's always a good time!

June 25th-28th 2015 in sunny Southern California.

www.naaf.org

Added by JeffreySF on May 13, 2015 at 9:00pm — 6 Comments

My 7th anniversary

I"m just a little late on this post but it's now year number seven. Going on eight.

How time goes by so quickly. It seems like it was just yesterday when my alopecia came into my life. 

So tough those first few years. 

It gets easier day by day. Year by year.

Hugs to all,

Jeff

Peace!

Added by JeffreySF on July 11, 2014 at 2:00am — 8 Comments

NAAF San Antonio 2014

Hello All,

Off to San Antonio tomorrow for the Annual NAAF Conference.

Hope to see many of you wonderful people there.

Hugz,

Jeffrey

Added by JeffreySF on June 25, 2014 at 1:12am — 2 Comments

My 6th anniversary with alopecia

Hi Folks,

Well...It's been 6 years today since I found that little bald patch on me...Picture it, July 5th 2007 I thought an ember of my independence had fallen upon me. But no it was Alopecia. i had never heard of it before.

It was pretty tough to lose all my hair within 3 months. I lost my identity and my self confidence.

I slowly started accepting what had happened after a year of turmoil.

How does a person deal with such a crises?

Luckily for me I found…

Continue

Added by JeffreySF on July 6, 2013 at 12:00am — 2 Comments

NAAF 2013 St Louis

Hello Friends,

Another year has passed. We're on on are way to St Louis for NAAF 2013.
This is my 6th Conference since my diagnosis of alopecia in 2007. I am so grateful for all the support from all of you!!!

Hope to see and meet many of you in person!!!

Jeff

Added by JeffreySF on June 26, 2013 at 2:50am — 2 Comments

My 5th anniversary with alopecia

Hi All,

Just thought I'd write a little something today.

It will be 5 years tomorrow since I found that first little bald spot on my head.

Yes it's been five years since I first thought an ember of celebrating my independence had fallen upon me. Turned out to be Alopecia.

It's been quite the journey. It was so hard at first but with the support of my family, Alopecia World and NAAF I'm happy to say that with time and support it does get easier. Of course I still have…

Continue

Added by JeffreySF on July 4, 2012 at 8:30pm — 7 Comments

The 4th Annual 12 Days of Alopecia

Hi People,
Shall we do this again?
Add a line and have some fun!
Peace!
Jeffrey

On the 1st day of Alopecia Areata I received my first little bald spot on me.

Added by JeffreySF on December 6, 2011 at 10:31pm — 20 Comments

My Current AA Situation

Hi All,

I thought I would share a few pics of my current regrowth.

For those of you that arent familliar I was AU for about 2… Continue

Added by JeffreySF on March 29, 2011 at 9:00pm — 39 Comments

Alopecia Areata Registry

I wanted to ask everyone to please help find a cure for our disease.
Please fill out a questionaire and donate a blood sample to www.naaf.org/site/PageServer?pagename=research_registry
This is our hope for a cure.
Happy New Year!!!
Jeffrey

Added by JeffreySF on December 29, 2010 at 1:47am — 4 Comments

The 3rd Annual 12 Days of Alopecia

Hi Friends,

I'm a little late but maybe we can make this work. Share your line and have some fun!

 

On the 1st day of Alopecia Areata I recieved my first little bald spot on me.

What happened on the 2nd day?

 

Added by JeffreySF on December 23, 2010 at 1:11am — 16 Comments

Another sucessful NAAF meeting

Hi Everyone,

I hope everyone had a great summer!

With the changing of seasons, I find myself with harmony.

Many of us went to Indianapolis in June for the annual NAAF Conference and had our chance to get together with old friends and meet new ones. It was exillerating!!!

Tonight we had our local NAAF Support Group Meeting and it was so nice to get back together with fellow alopecians. It always feels so good for me!

It's been quite the journey. Good days with a few bad… Continue

Added by JeffreySF on September 16, 2010 at 2:30am — 5 Comments

A funny thing happend on the way home from NAAF

Hello Gang,

It's been three years now since my alopecia started.

It all started July 5th 2007 with a small round bald spot on the left side of my head. Within three months I had lost so much hair I decided to take the plunge and shave my head for the first time.

I became comfortable with my new self image with the help of Alopecia World and NAAF (3 conferences in 3 years)

I was AU for about a year and slowly things have been "Growing Along"



After the NAAF Conf in… Continue

Added by JeffreySF on July 21, 2010 at 9:00pm — 20 Comments

NAAF 2010 Indianapolis

Hi Everyone,

I hope your Summer is off to a great start!
We're off to the 25th Annual NAAF Conference in less than 48 hours!
I cant wait to see all my friends and make some new ones!

Yay!!!
Jeffrey

Added by JeffreySF on June 23, 2010 at 12:57am — 4 Comments

Alopecia Books

Hey Gang,

I have an idea!
How about passing around some books about alopecia? Once you read it write a note inside and pass it along.

Jeffrey

Added by JeffreySF on March 12, 2010 at 10:42pm — 11 Comments

NIH Funding for Alopecia Areata Ending in Sept 2010

Hello Friends,

I wanted to put the word out there that 10 years of NIH funding for alopecia is coming to an end this Sept.

Please help be part of the cure It's free and painless.

www.alopeciaareataregistry.org

Sending all the best to all!

Jeffrey

Added by JeffreySF on January 24, 2010 at 10:00pm — 5 Comments

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