Comment by Diana on January 13, 2009 at 11:03am

This is all very amazing to me - I am very thankful of course that this is not a killer disease - just a very unfair one and I sure hope my genes do not continue on....

Comment by Trina on January 13, 2009 at 12:09pm

I have AU, allergies, asthma, and they now think I have an underactive thryoid.. I will find out on the 22nd. They are all related somehow.. My daughter was diagnosed with AA and she has allergies and asthma as well....

Comment by Diana on January 13, 2009 at 12:57pm

I wonder if you are born with this and it stays dormant somehow - I can deal with this I wish I knew more and yes of course if there was a cure that was not to harmful I would be up to it! And Trina... I am sorry your daughter has it, thats tough, I know none of us parents would ever wish our children to go through anything, especially in todays society. Funny thing nobody in my immediate family, including grandparents has this, or ever had aa, au, any allergies, asthma, eczema, psoriasis etc... - I could talk about his forever.... sorry! have a great day everyone!

Comment by Trina on January 13, 2009 at 1:16pm

Diana,

My mother had AA one time and never another spot. Thank you for the condolences. It is hard to feel like you are the reason she has to deal with something. It came back right away and I continue to pray that she is ok.. I just think that if she could get her asthma under control then somehow that would allow this to go dormant forever... When her asthma was out of control she had no problems.. They are somehow all related to one another I believe.. There are other on here who have children with it as well... Of all my sisters I am the only one with asthma and the only one with alopecia as well

Comment by Diana on January 13, 2009 at 1:20pm

So weird about the asthmas and no problems - when my hair fell out in October just in clumps, my psoriasis was pretty bad, but exactly a week prior to my hair falling out, my psoriasis DISAPPEARED, I MEAN GONE, LIKE it all went to my head or something! Now that my hair is all gone everywhere, I have back my lovely psoriasis! - I hope your daughters will continue to grow back, I had AA when I was 10 and had those cortisone shots in my head... my hair grew back and I pretty much forgot all about it until almost 30 years later now complete AU!! wow... the body is a strange animal!!

Comment by Trina on January 13, 2009 at 1:24pm

well I was giving her aloe vera juice and a biotin supplement and it was really working. I stopped and a small spot appeared. I am going to start her back on it and she is back at the dr because meds did work for her within a month I saw regrowth. I just dont want her to endure this struggle... It was hard to deal with and I am so much stronger but for her I want more.. I dont think it is wrong for me to want her to be healthy and happy... Is it?

Comment by Diana on January 13, 2009 at 1:39pm

I don't think it is wrong, I would be doing the same thing, if it worked before it can work again, I would do anything for my children not to go through other kids meanness and torture, and their self being for when they get in the teen age years - I believe we as parents can install that positiveness in our children and awareness but not too many people I know have even heard of this disease and say oh your hair will grow back... I am babbling again! I believe I would do what you are and try again and see if the next round works for and keep doing the biotin :-) Trina have your allergies or asthmas changed in anyway? Diana

Comment by Trina on January 13, 2009 at 1:47pm

My asthma and allergies brought on eczema and migraines and I break out in a rash if I use the wrong soap powder...It seemed to have gotten worse.... They now think I have an underactive thyroid so the inside of this body is crazy but hey it could always be worse.

Comment by Diana on January 13, 2009 at 1:54pm

You are right it could be worse I thank my lucky stars everyday :-) I wish you all the best and hope to hear some great news about your daughter, Diana

Comment by Erin Brown on January 13, 2009 at 2:45pm

I also happen to believe that there must be a missing link we haven't found yet. Along with AU, which I have had for a year now, I also have Ulcerative Colitis (15 years), eczema or psoriasis (ten biopsies and no clear diagnosis 5 years) and finally, I have a disease in my eye. I forget the long name for it but it is a disease that my immune system attacks my cornea and I get ulcers in my eye (7 years). My immune system started all this 15 years ago when I was 13. Has anyone ever seen an immune system specialist? I am not sure they exist. I live in Cincinnati, OH which is home to one of the best college- hospitals in the country and not a single dermatologist or even my Gi doctors have any clue. Best to all of yas!

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