Do they go together?


Hi I am just curious to those on tis site if any other members has Fibromyalgia as well as any form of alopecia?
I live with both conditions in severe forms.
I know some hair loss years ago was stress related but the facts on Fibro are a little anecdotal.
Hair loss made me lose a lot of self confidence and alo the rest at one point.
I have a loving close family but they cannot imagine the real me inside .
Should any reading this have FMS also or know anyone with both conditions I would be interested to know their 'history'
What came first? Which is more challenging?
How do you cope with both sapping confidence? Etc etc!
Help anyone?
I take loads of pills for FMS and other conditions but they do not help/hinder hair situation.

Views: 76

Comment by Cheryl, Co-founder on July 22, 2013 at 6:09pm

Hi Skit,

I did a search on Alopecia World to see if anyone else mentioned Fibromyalgia and came up with the these links for Fibromyalgia, maybe you can look there.

Comment by skit on July 24, 2013 at 1:13pm

Thanks Cheryl.
I have contacted one lady who knows where it will end?

Comment by michelle on July 24, 2013 at 7:45pm

I was diagnosed with fibromyalgia in 2007 and began losing my hair 2 1/2 years ago. ( I now have AU. I have been told by 2 rhumatologist and 2 dermatologists that the two are unrelated. Alopecia in its various forms is an autoimmune disease where fibromyalgia is not. Because some of the symptoms of fibromyalgia and lupus(another autoimmune disease) overlap it can be challenging for docs to give a proper diagnoses.

While no connection.....still a drag:)

Comment by skit on July 26, 2013 at 9:45am

Thanks Micelle .I have had Alo for more years than than diagnosed Fibro! However dermatologists gave up with Alo years ago gladly the same cannot be said of my rheumatologist

Comment by Pat on July 28, 2013 at 5:37pm
I don't have fibro but I have poly myalgia which is painful and is autoimmune.
Comment by skit on July 29, 2013 at 3:23pm

SSo Pat is hair loss an issue with you & polymyalgia?

Comment by Pat on July 30, 2013 at 8:39am

Oh yes, I've been AU for over 20 years now and the poly hit me about 4 years ago.

Comment by skit on July 31, 2013 at 2:45pm

Poly is more area specific I think?
Poly you can get steriodal treatment ?
Fibro does not have steriodal treatment only painkillers of varying strengths.
Do you think Pat poly treatment has had any change on AU?
That is why I started blog as some people see hair loss as part of another condition!

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