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Doctor's appt tomorrow
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Comment by lynne on September 18, 2009 at 3:35pm
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hope the doctors goes well, much love to her, xx
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Comment by Angie, Gracie's mom on September 20, 2009 at 8:56pm
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How did the dr appt go? Gosh, she looks so much like Gracie! I remember that I used to dread the bath because I would see the spots more. We are doing OK right now. I too am accepting, but every once in awhile... So Gracie declared war on my toe and dropped a can of creamed corn on it, gotta love em--but it is moments like this where you forget the AA, and relish in the child, right? I wish it were easier, and I wish I could look at her and see face, not her spots. Let me know what the docs say. How is Kayleigh doing otherwise?
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Comment by Shay and my girl Kaleigh :) on September 20, 2009 at 9:19pm
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I didn't learn anything at the appt. She did say she had some regrowth starting in the one big spot (her first spot) and that she was doing great, it was resolving itself, and that it would just take time, then I showed her the bath pictures where she could see all the other spots and I could tell by her reaction that she was shocked. All she said was "Oh My". Other than her hair continuing to thin, she is doing great. She will be in another pageant this weekend. Its a jeans and tee shirt pageant at a fair so I designed her a tee shirt. It arrived today, its very colorful and says alopecia awareness on the front and princess with alopeica on the back. I'm going to add some decorations to it. I'm thinking about using little pink fuzzy iron on poodles and shaving their heads lol. I will have to see how it looks. I can definately top the cream corn!! about an hour ago, Kaleigh took her diaper off and pooped on my bed then smeared it ALL over the matress...needless to say I will be sleeping on the pull out sofa tonight. but your right, gotta love em! I do have a hard time with putting her in time out now, she gets away with way more than she should but I hate to make her cry. Her doctor said stress probably triggered it, so I don't want to stress her out. I have quit looking for new spots as often, mainly because Kaleigh says "no mommy my spots" and runs away. She never was one that liked her hair brushed. I guess whatever it takes tho. I talked to my pastor today after church and he said we will anoint her with oil and pray for her at church next Sunday. I told him I had doubts about it working and stuff... got really honest. Hes such an understanding man. He said "Look at it this way, what will it hurt to try?" and I am willing to try anything so we will do it. Take care, better get back to my homework. We will keep praying for you and little Gracie
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I saw the pics for the shirt, you did a really nice job. Good luck w/ the pageant. I really don't think we have pageants out here in the NW, other than the typical older girls stull. That really sucks abuot the mattress... yuck!! Only had to deal w/ poop smearing once, and it was relatively contained! I wonder about the stress piece--how much stress can a 1 or 2 yr old have? I thought I had heard that it wasn't a cause of AA, but I will ask the specialist we see about that in December when we go back. I too hate to make her cry, and I don't want to do things differently w/ her that I did w/ my son, or continue in the future when she and he will notice it. For example, I would make him cry it out in his bed at this age because it was manipulation, whereas for her I sit in her room to add some consolance. This is a hard one. By the way, how many months is Kayleigh?Good luck to you, I am thinking of you often! Angie
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Kaleigh turned 2 in May. Her pedi said the "stress" was not typical stress as we think of it, but stress on her body from a high tempture she had 2 months before. I did read somewhere online that a high temp can cause them to lose hair and it can show up as late as 3 months later. idk. I did get a call from her pedi today saying that she talked to another dr. and she wants Kaleigh to come in tomorrow for bloodwork to check her thyroid. I had already forgot that I posted pics of the shirt....shows how tired I stay I guess lol. talk to you soon. Shay
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Shay, if she hasn't had her iron tested, make sure they do this. The alopecia specialist we saw, Dr. Janet Roberts, said there is new literature that indicates that people w/ AA have a higher propensity towards iron deficiency. Gracie was low, and we supplemented and it seemed to help. They tested her thyroid too, and there are better tests than others, so you might want to research a little first, I forgot what is the good one. They had to test her Ferratin (iron stores) to find out she was anemic though, the iron studies missed it. Dr Roberts also thought that the stress Gracie had being so underweight could have contributed, but she is up now, and I just discovered huge spots today in the tub in the back of her head, so big-half dollar size-- I thought I might vomit. It just hits you right in the gut, you know? Good luck w/ the labs!
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Btw, low iron can cause hair loss too. Angie
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Oh sweetie I am sooo sorry to hear she has more spots. Thanks for tip about the iron and being anemic, I will definately push to get those done tomorrow too. Kaleigh has always been underweight, alo we are up to 2% on the charts now. Her dr didn't mention that being underweight causes stress on the body. I never even thought about that...I better do some more research tonight.
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How did the dr appt go? Luckily, even though we have a crappy HMO, my ped has been liberal w/ the referrals, and we have been to some really great specialists in our area, and she has run the gammet on testing, mostly to come back fine other than the iron. So, I am happy to pass along my info that I have learned over the past 6 months, it helps to know that her going thru it all might help someone else too! :) Angie
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it went good, in and out in 15min. We only went to the lab and they are suppose to call us with the results. I agree it does help to think that maybe she will help other kids going thru this. Maybe when our girls get older and they really understand what is going on with them, we can get together and let them get to know each other over a mini vacation or something. We are heading to mcdonalds and then the park. Hope you have a good day!
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