its 2am and I can't sleep, the house is quiet and my dd if fast asleep with no worries. She has a dr. appt at 4:30pm tomorrow at which time I will be wishing that I could sleep, I'm sure. I want them to do blood work so we can learn as much as possible but yet I don't because I HATE HATE HATE having to hold her down and… Continue

Sundays are my favorite day of the week! I came home this morning from work to find that a water pipe had busted under the house yet again. So I fill up the kitchen sink before he cuts the water off. First I bathe Kaleigh then get her out and start to let the water out. Panic sets in for a split second as I realize if I let the water out there will be none for me and I need to shower before church so I grab the sink stopper and plug the hole. As I'm climbing in the kitchen sink to take my turn… Continue

Guess I'm not really looking for answers at this point, just coming to accept that we will never know what tomorrow holds. We do have a new bald spot and some more thinning hair. So far, this has all been in the same area, very close to each other. I'm having dreams now, that she is bald and I fall apart. I guess thats my fear, not the baldness but that I fall apart and can't give her the support she needs. I'm to the point now of asking myself how I can turn this into a minsitry. Not that I… Continue

I'm not even sure what I feel right now. I am going to school to be a sign language interpreter so I am comfortable with being involved with the Deaf culture/Deaf community and I have always imagined how life would be if my daughter was somehow different from other kids. I thought that I would embrase it with positivity and open mindedness, that it would not change a thing. That I would adapt and do what needed to be done without feeling sad for her but I just can't do that right now. I don't… Continue