its 2am and I can't sleep, the house is quiet and my dd if fast asleep with no worries. She has a dr. appt at 4:30pm tomorrow at which time I will be wishing that I could sleep, I'm sure. I want them to do blood work so we can learn as much as possible but yet I don't because I HATE HATE HATE having to hold her down and hear her scream while she does. She has new spots, she has a lot of thinning areas. I'm past the shock of it and actually very close to being ok with it, accepting it, on a daily basis. As long as I don't look at her pictures from a couple months ago when she had hair long enough to lay on her shoulder blades, I do pretty good with it. I took some new pics tonight of her hair while she was in the tub because you can see a lot more of the spots when her hair is wet. I plan to show them to her doctor. I'll try to post them here and then one of how it looks dry. There really is a big difference to me but maybe I'm just still learning the ropes. We are very fortunate that for now her hair style allows for the marjority of spots and thinning to go completely unnoticed when its dry. I've done a photo time line from the day I was told she has aa and it has definately progressed in a short period of time. :(

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Comment by Angie, Gracie's mom on September 23, 2009 at 1:39pm
Let me know what happens, I'm thinking about Kayleigh. Like I said before, I really want to go to the outer banks sometime when kids are a bit older, so maybe we could head your way! They are so close in age, only about 6 mo apart, and one of my biggest hopes is she can find a friend who struggles w/ the same thing as her. Keep me posted! Angie

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