Well even though I don't know anyone on here, this is the 1st time I'm formally coming out and saying I have alopecia. I'm just SO FRUSTRATED. I noticed a bald spot September 2013, quarter sized kind of at the lower part of my head. Of course I freaked out I'm 23 years old engaged and have long curly hair. I immediately knew what it was. I went to school with someone who had/has AU. He's my inspiration because for the last 5+ years he has had all of his hair! Anyway I noticed a small bald spot last year and it has developed into a very large spot, on the other side of my head by my ear I'm noticing thinning around the edge and today I found another very small spot in the middle of my lower scalp. For The Last YEARS I've Tried NOT to stress About It because Fortunately for me I can wear my hair down and my spots go unnoticed. It's been this way for a year but I feel like it's going down hill. I am so mad at my body for doing this to me, I feel betrayed by myself! I've been to a dermatologist (steroid injections and a spray, no help) as well as a rheumatologist no help (positive ANA) whatever that means. Will it ever get better! I'm trying so hard to live a normal life and be happy for how healthy I am otherwise but it's getting really hard to see the bright side.

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Comment by leah on September 6, 2014 at 2:58am
Hello Andrianna, understand your frustration and worry. Best thing with innume system flare is to try cut back on stresses and allergies by hat may cause flare ups. Be easy on yourself. I know people had just few spots and than finally all back. Plus if worst or one hatdest thing really not bad relative to people who are in war, lost limb etc. My hair loss started with spots. If can try exercises, deep breathing / mindfulness to help deal with anxiety. Best
Comment by leah on September 6, 2014 at 3:01am
Maybe look into holistic Dr and thyroid testing. Most common medical reason for hair loss...
Comment by leah on September 6, 2014 at 3:03am
Also try reach out to old fellow classmate, maybe they have some advise / support.

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