So I'm looking at my head in the mirror and for the last few years I have ever so slowly been getting regrowth after years upon years (about 17) of having no hair at all whatsoever. I haven't done anything differently or taken any meds so this is completely occuring on its own. About 10 years ago I stopped wearing wigs most of the time and in the last year when I've seen the most growth is the time I've started becoming more involved in helping others with alopecia. Crazy coincidence!

It all started with my eyebrows and eye lashes slowly coming in although I am still missing eyelashes on one eye lid and have to fill in my brows with a pencil because only half of my brows have gained pigment, the other half is still clear hairs (like long peach fuzz). Then I had to start shaving my army pits and other unmentionables started growing back (although patchy as well and probably TMI). The hair on my head started with a small patch on the back in the shape of an "A" which, over the course of a year, turned into a smiley face somehow. I've been taking pictures of my regrowth process and although a larger percentage of my head is covered with hair now (close to 60% or better) and is spreading to cover my head, I still have patches and notice over time that they move around but usually stay within the same area. So I guess, technically I have alopecia universalis areata because I still have no leg or arm hair (not that I want it either). One hair grew back on my big toe which I've been cutting off because for the last two summers it's driven me nuts as it blows in the wind when I wear sandals. I couldn't imagine having hair on my arms and legs. Everytime the wind blows I'd go insane feeling every hair move.

After dealing with various forms of alopecia for the past 31 years, this one is new to me and I'm finding it rather irritating. Someone who has had alopecia as long as I have isn't expected to ever regrow a full head of hair and I'm not about to let my hopes climb sky high either, I know what to expect or at least think I do. One thing that remains certain however is that letting my hopes grow is potentially damaging to my self-esteem for when it all falls out again I will have been let down by something no one has any control over. I pondered the thought of visiting with a dermatologist however the last guy I saw told me I know more about it than he does so my chances of finding a doctor who does know his own hole from a hole in the ground is not likely. The treatments that seem to work on those with minimal hairloss may perhaps work on me now but I have no proof and not nearly enough research has been done, especially on those who've had it for a very long time.

Basically, I'm all patchy now and this is taking a very, very, VERY long time to do what it's doing. Fall out again or grow back but this patchy stuff has got to stop. The lashes and brows have been quite welcoming in keeping sweat and dust out of my eyes however I would trade all that in a second for having nothing at all. Having a clean palate to work with is much more enjoyable than trying to make what you have work for you instead of against you. Anywho, I've rambled on quite enough but wanted to share my thoughts on this regrowth. It's not likely however if you've been follically barren for many years and have experienced something similar I'd love to hear about it. Thanks for reading!! :)

Views: 29

Comment by Nicole on October 27, 2009 at 11:36am
Carol..U & I are in the same boat! :-) I am not seeing growth on my head but I am patchy everywhere esle. I just shave it all off because I got so used to not having any hair. It is so much easier to deal with a clean palate as you put it...lol. Since having AU, within the last few months I have experienced less downs and more ups. I hope that makes sense...lol
Comment by Carol on October 27, 2009 at 11:42am
That makes tons of sense Nicole! It's like having hair or no hair is like yes and no, it's there or it isn't. Being patchy is like someone telling you "maybe" everyday.
Comment by Mary on October 27, 2009 at 2:08pm
Carol, thanks for sharing - it wasn't TMI! I haven't been dealing with AA anywhere near as long as you have, but I feel exactly the same way. I'd rather stay completely smooth and hairless and not have my mind messed with by stray hairs growing here and there.

After being AU for about 9 months, I started growing hair on my face - brows, lids, nose, cheeks. I had hopes I'd get my entire eyebrows back, but after over 6 months, I only have a little spot of hair on the right brow, with the left one fairly complete. It looks pretty funny.

I've done much better emotionally just assuming that I'm going to be bald for the rest of my life. But, getting this little bit of regrowth has got me thinking about it all coming back, unlikely though that is. The "maybe" is back, and I don't like it! ( ;-)

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