I hate alopecia. I go from extremes, where i'm ok with it and act like it's not a big deal, to where i cry myself to sleep, hating everygthing about it. I wish i just had patches, that'd be so great. I hate losing my lashes adn brows, and i hate having to wear a wig, and i hate being bald.

I hate it so so much. I really do. It just makes me so sad and feel so revolting and i look like a freak, I feel like a freak. I hate it.

And then to make it worse, everyone else around me pities me and dishes out teh sympathy, which i dont want. I just want people to be ok and be cool and not let it phase them, but when i see them get so upset by it, and them get all "Oh you poor thing, how horrible" it makes it all worse. I just hate it so much. And my parents, you’d think they’d be really strong in a time like this, but they just get upset, and my mother keeps looking at my hairline and looking to see my eyebrows and lashes, and it all just makes me so much more self conscious about it. I really hate their attitude about it too. And I keep trying to tell my mum how it makes me feel, she goes into denial that she’s not doing it, which makes me think she has major issues anyway.

Why isn't more being done about it? why isn't someone out there looking into a cure for it? Or a treatment that actually guarantee works? I want something done adn i want to fix it and i just dont want to have alopecia anymore. I hate it. If anyone knows something that actually guaranteed to work, please let me know coz I’ll try anything. I hate being like this.

Surely someone, somewhere, is trying to find a cure????

Views: 3

Comment by Tallgirl on April 12, 2009 at 11:24pm
National Alopecia Areata Foundation (www.naaf.org) funds research. See what they are up to and try to go to the conference in Houston in June.
Comment by SportyAusGirl on April 12, 2009 at 11:25pm
I live in Australia, so sadly the NAAF is out of my reach.
Comment by Jeff W on April 14, 2009 at 12:34am
Hi Sporty!
I know alopecia is a maddening and frustrating disease with no clear cure and I think it's always good to vent our frustrations and sadness once in awhile. I feel like a freak sometimes too, but I honestly don't believe I've met a single other person who perceives me that way. You are a very attractive woman - hardly a freak. I think we tend to be very harsh on ourselves. I do have to say, that looking at your profile you do seem to know how to enjoy life (and life in Australia must be pretty sweet)! It may not be as simple as it sounds, but I really have found that the things in life that I truly love are equally appreciated regardless of the state of my hair. We all want someone to find the magic cure for this, but until that happens, don't let this thing diminish your joy of life!

Jeff

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