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Comment by Tallgirl on October 31, 2012 at 9:21am

Look up side effects from the above drug mentioned for onset alopecia, abatacept. Scary...especially when combined with herbs. This is why research and testing is so important.

Orencia (Abatacept) Drug Information: Clinical Pharmacology - RxList
www.rxlist.com › ... › orencia (abatacept) side effects drug center
Learn about clinical pharmacology for the drug Orencia (Abatacept). ... The results of the components of the ACR response criteria for Studies III, IV, and SC-I are ...

Precautions and Warnings With Abatacept
pain.emedtv.com/abatacept/precautions-and-warnings-with-abatacept...
You should not take the medication if you are allergic to any components of abatacept. Before starting treatment, tell your healthcare provider if you have chronic ...

Comment by Jen on October 31, 2012 at 8:58am

My son has had AA Universalis for 2 years now. He is having some regrowth on his eyebrows but we don't know if it's permanent. However, my dad had AA in spots. His came during a very emotional, stressful time for him and it totally came back. That was 30 years ago and it has not fallen out again...so that's hopeful for anyone with AA! I'd also like to ask if anyone in this thread knows of any NON MEDICAL research ? Personally, I'd like to find a treatment or a natural cure. I am not interested in any drugs or shots for my son.
I know there must be some herb or plant or something that would help and it just hasn't been discovered yet. There are herbs for everything in the wild. I'm hopeful!!!

Comment by Blue tulip on October 31, 2012 at 7:38am

Hi Caroline

So great to hear your story, yes we all want that happy outcome, I look forward to it as well. Thanks for sharing :-)

Comment by Caroline Prideaux on October 31, 2012 at 7:33am

Hi, I have been a member here for a while but always found it hard to visit as most people (like myself) were here looking for answers which you never really find. Just before my 18th birthday about 1/3 of my hair fell out from my scalp. Needless to say that it wasn't the best 18th birthday present you can have! After countless efforts to find answers by going to see specialists and trying a number of steroids and herbal remedies I had to except it. I managed to get away with just wearing a hat at this point, and I was lucky as I didn't loose any on the top, it snaked round underneath. It then started to regrow and I near enough had a full scalp of hair in time for uni which was perfect. I finally felt confident enough to start dating as well. But then 2 months into uni it all started again. At this point I had just started seeing someone and was terrified by his reaction if I told him, However, I had absolutely nothing to worry about. He accepted it and supported me and I'm still with him now 4 years later. Since that second episode it all grew back again. But then I relapsed very badly. In about 2 months I had lost 95% of the hair on my scalp, all my arm hair, leg hair, eyelashes and some other areas. I had to start wearing a wig and felt very unwomanly without my eyelashes or hair. I did feel very low at this point and thought that this was it, theres no way I can come back from this as they say if you loose more than 50% of your hair your less likely to have regrowth. However, today, after wearing a wig for 2 years, I am happy to say that every single hair has grown back to how it used to be before all this happened. I've had alopecia on and off for 4-5 years, and am now hoping that this is the end. Not having to wear a wig everyday is a lovely feeling, I love the wind in my hair and being able to style it :) There is hope for everyone. I lost practically every hair on my body and have 100% bounced back, without the use of any steroids or herbal remedies. I wish you all the (hopefully) happy ending that I have had. Good luck and fingers crossed for us all!

Comment by Blue tulip on October 31, 2012 at 6:37am

Hi Laura

I am going through this at the moment would like to send you a message re" inflammation, prebiotics.

cheers

Blue tulip

Comment by Katie C on October 31, 2012 at 5:46am

Hi Tracey, I signed up to this website about 2 years ago, when my hair loss was getting to almost its worst point, about 6 months after I had to start wearing a wig. I am a doctor, and as much as I wanted to go without a wig, it just got to a stage where professionally it was getting difficult. I always enjoyed coming on here when I got a chance, but reality was that I got on with life and just didn't have much time. When I saw your post for hopeful stories, I thought I'd come and share.

It's now been 6 months since I last wore a wig, so its kind of fitting that I'm leaving a post. I had lost 90% of my hair at its worst and both my eyebrows, but for whatever reason, it started to grow back almost a year ago. just sprout here and there bt eventually enough cover for me to put the wigs away. I didn't change anything about my life at all, no special diets, no medical treatment. As we all know, there is no rhyme or reason to this condition. I still have to draw my eyebrow on everymorning, and my hair is by no means back to its previous gorgeous state, there is 1 large patch at my left temple that has never grown back but no one knows unless I tell them. 2 sprouts of hair grew back pure white (I am asian with jet black hair otherwise) but people assume I am far more trendy than I actually am and got those done on purpose as streaks! Last week, I discovered a new patch at the back of my head, but I'm not too bothered. I still tell people all the time about my alopecia, and if I lost all my hair again, I know that I am strong enough to face it. I don't know if its much of a hopeful story, but its my story anyway... Good Luck!

Katie =)

Comment by Noreen Hashmi on October 31, 2012 at 5:45am

Hi
I've had alopecia for 8 years now, I am 40 years old and I noticed a patch after the birth of my youngest daughter. The patch regrew and then fell out again continuously for 4 years, but luckily it was at the back of my head and no one knew I even had it as I used to have really thick hair. 4 years ago I started noticing my hair falling out more than than usual, it got to the stage where I was afraid to comb my hair in the morning as clumps of hair would come off. I hadn't even heard of Alopecia and immediately thought I had cancer and was going to die. I became very withdrawn and couldn't focus on anything, I didn't want to go out or even meet people or attend any gatherings. Within 2 months I completely lost all my hair. I was devastated as you can imagine, why me? What have I done to deserve this? I've never done anything bad to anyone so why me? Does God really hate me that much? The worst of if came when my eyebrows and eyelashes fell out, I just didn't look like me anymore. I became depressed, and withdrawn, crying all the time, I couldn't concentrate on my home life or my children, I felt like I was living but not really alive. I even tried suicide, something which I've never disclosed to anyone. But I didn't even have enough courage to do that, when I thought about my children. I was at my lowest, my family were very supportive, my husband would always say you still look beautiful and I still love you, but that still didn't make me feel beautiful, because when I looked in the mirror I just saw this horrible scary unattractive person. Doctors gave me no hope, and told me the condition was uncurable. Although ive tried many treatments, sometimes the hair came back, but only to fall out again. The turning point for me came one day when my brother called me and told me that he was going to take me to meeting where I would get to meet other people who had the same condition as me, I didn't want to go, but he was persistent and encouraged and supported me. i wore a scarf to cover my bald head. We turned up to this room above a pub, and slowly to my surprise the room became full of beautiful bald men and women of all ages, some were wearing wigs. We were all told to introduce ourselves and talk a lit bit about ourselves and how long we had this condition. It was a really emotional meeting there wasn't a dry eye in the room, but that day was a turning point in my life after meeting so many people with the same condition as me, I felt I wasn't alone, some people had the condition from the age of 3, I felt that I had my hair for at least 32 years of my life, hearing other peoples stories really made me accept my condition, it has taken me 4 years, but today, when people ask, oh you have no eyebrows or eyelashes, I can say I suffer from a condition called Alopecia, I wear a scarf, so a lot of people don't even know I that I'm bald. I feel confident enough to wear a wig in public when I want to. Although I still have my down days, but I generally have more days when I'm happy and confident for who I am.
Noreen

Comment by seamonster on October 31, 2012 at 5:12am

Hi Dear,
My hair has grown back as well so I rarely come here. Just like the other posters, I went on a raw diet, drank herbal teas, left my corporate job to live a life of stress free squaller with better health. I created cheap natural onion hair mask that I share with anyone that goes to my you tube channel or blog. I keep my updates. Didn't feel like this was the place to share that, cause I know how bad hair loss feels, and I applaud those that do it with dignity. My psoriasis and arthritis went into remission as I treated the AA.

AA is still active for me I am just growing new hair as I am losing it. Patches fell out of my eyebrows and lashes the other day. They are already growing back. Hope this encourages you, and respect those at different stages of the journey. Honestly I must admit after twenty years I get a little tired of the fight. Sometimes bald does look cool, but I don't want that horrible arthiritis back.

Comment by Meg on October 31, 2012 at 4:22am

Hi Tracey! Like Jaclyn, I don't come on here much as my hair has regrown. I was also very lucky with my AA which wasn't severe, I could largely hide it, and I haven't had to go through the struggles that a lot of others have. I have a great amount of admiration for the people whose stories I read on this site. If it is hope you are after, I can tell you that my hair has fully grown back - my dermatologist prescribed a steroid lotion which I applied every night, and now it is about two inches long. I am very lucky, and I do feel a bit guilty posting this, but if what you want is for your hair to grow back, I am proof that it can happen!

Comment by laura on October 31, 2012 at 4:20am

i have a hopefull story,i had shaved my head last october after trying in vain to cover my spots up and since then i tried evrything(and got a little obsessed).....i made some huge life decisions to cut back my stress,started on prebiotics,stopped smoking and started intermitent fasting to cut down inflamation......i dont know for sure if its just coincidence but i have had full head of hair since spring and fingers crossed it keeps growing.....alopecia hands out some drastic life lessons and lets us see the farce of vanity.....i will never take my hair for granted again x

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