Hopeless

Hey all,
I am having a very difficult time right now. As alot of you know...I was diagnosed as having hypothyroidism march 08 by a doctor that considers normal range lower than most for whatever reason. At the time, I had no symptoms of thyroid problems but went on the medication per his recommendations. Nine months later, hell begin so to speak....major hair loss, severe muscles aches, freezing cold all the time and frequent infections. I went to an acupuncturist and herbal therapist after 9 months of repeated doctors appointment with no answers. The acupuncturist put me on some herbs which I responded beautifully to....came off thyroid meds two weeks into the treatment and felt human again. Six weeks into that treatment...started showing signs of iodine toxicity with burning in my mouth and throat so immediately stopped his treatment. That has been 6 weeks ago tomorrow....now I feel like I am spiraling down again. Just found out a couple of weeks ago that I have sclerosis of my spine in one area and my back aches all the time! I am 39 and feel like I am 89. I had no quality of life on thyroid meds plus my hair loss was sooooo much worse on thyroid meds. My symptoms of thyroid trouble was sooo much worse when on meds. I feel completely hopeless of ever having a normal life again. I feel like such a freak with my hair loss! I know without a doubt in my mind...if I have to go back on meds...I will lose all of my hair! You guys and gals out there are soooo strong....you all truly are my inspiration! I hate my appearance...I feel sooo ugly and I dont think I will ever be the same! More importantly, I just want to feel ok and not have to spend the rest of my life in pain from thyroid disease.

Thanks for listening or reading...lol

Donna

Views: 25

Comment by Smack on November 24, 2009 at 8:52pm
It's funny that you say your doctor considers the normal range lower than most, because my doctor does not and I've never felt the same energy I did before I was diagnosed and put on synthroid. I had a specialist (not an endocrinologist) who spent some of every month in a US practice and he told me that doctors in the US are much more rigourous in their treatment of hypothyroidism, and the the view of 'normal' is probably a low or that what might me normal for most people is low for others. That kind of thinking hasn't caught on with doctors up here yet, or at least not mine!

You will toughen up on the AA :) Maybe it's because I've had it for so long, but it's just part of me now. It's just there, not good, not bad, just there. Sure there are moments now and again when I wish I had my own full head of hair back but you know what? I get more compliments on my wig than I EVER did on my own hair and my own hair was nice! With a wig there's no bad hair days, you set it the night before, no sleeping in curlers, wake up unroll the suckers and poof fabulous hair you don't have to blow out, for ages. Wigs are pretty convenient that way ;) And if you get a good one, which you will if you're going to continental, no and I mean no one, will know you're wearing it (if that's what makes you comfortable).

I wish I could say that I'm ok with walking around bald without my piece, but that's just not me, it's not how I see myself or identify myself. It's definitely a process of letting go of the hair as it falls out. You may find that wearing a piece will help you with the process, ease it for you, it did with me when it got to the point that I couldn't cover my spots with my own hair anymore.
Comment by BTB (John) on January 17, 2012 at 10:53pm

Pat has Alopecia and now has developed Poly-Myalgia seem once you get an auto immnue disease aches and pain follow. Its hard to deal with but you seem to be proactive so it must get easier if not necessarily better.

Comment

You need to be a member of Alopecia World to add comments!

Join Alopecia World

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service