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Comment by Tim Irvine on March 7, 2014 at 4:09pm

I did in 1986. I chose a place that was absolutely loaded with people. I was running a 10K in New Orleans that had 22,000 people in it. My logic was, if I can go and suddenly face 22,000 people, then I would be better prepared to face the hand full of people in my home community that I feared facing the most. It worked in the fact that it got me started. There is no magic bullet. You will gain more confidence as you go and after a while, it won't matter any more. Best of luck! I hope this helps some. Tim

Comment by GP on March 7, 2014 at 3:28pm

Communicate to your husband and daughter exactly what you wrote in your post. It will be difficult for all parties involved, but things will improve, especially after you speak your mind. They will have a harder time adjusting then you will, but they have to see that your ok with it first. Be very patient, they will come around, because they love you.

I went through the same thing with my parents. I had totalis at age 4 and universalis by age 5. It will be hard, but so worth it in the long run. Own it and be proud. Best of luck!

Guy

Comment by Tennessee Mom on March 7, 2014 at 3:27pm

My daughter made a notecard video on you tube where each card told part of he story and then posted the you tub video to her facebook page.  It was very powerful.  She did not come up with this idea on her own.  She "borrowed" it from another young lady.  Not sure if the link will com,e through but here it is  http://www.youtube.com/watch?v=quFXCzPx9IU

Comment by Courtney on March 7, 2014 at 3:23pm

Marie,

I am so glad to know that I am not the only one feeling this way!! Here is a little about what I have been through:

 My first episode with Alopecia, was when I was about 19 years old. My life was VERY stressful, and I started to loose my hair in small round patches, and eventually, within 6 months, I had lost all my hair from my ears up. So, I shaved what little hair I did have, off. I had Alopecia for 2 years during this episode, and was completely bald for 2 whole years, and wore wigs. I got out of the situation I was in, focused on myself, and as most of the stress slowly went away, my hair started growing back, in patches, very very finely. My hair finally grew fully back in.
I didn't have any problems with my hair or Alopecia again, up until about 6 months ago, when I started loosing patches just like the time before. Like last time, I lost all my hair from my ears up, so again, I shaved what little hair I did have, off. I could have sworn, that having it the 2nd time around, would be easier.... SO NOT TRUE!!! SO MUCH DAMN HARDER!! All I could think was, "DAMN IT!! Not again, please Lord, NOT again!". But, unfortunately it did, it happened, I had my 2nd epsidode of Alopecia. I shaved my head for the 2nd episode of Alopeica about a Month and a Half ago.
I've come to realize, that hiding the fact that I have Alopecia, I am bald, and I wear a wig... makes everything for me SO MUCH WORSE! My method?...To be as upfront and honest with as many people as you know and meet. Before they can even ask ANY questions... answer them for them. It has helped me TREMENDOUSLY, and I have gotten a TON of support.
I am hoping that my hair will soon grow back again... but if not... I am just "Bald and Badass"!

I know how hard this is to do... but the more open you are about it, I find it's easier to cope with. Try not to play "poor me" (which I am sure you won't, and I am definitely not implying that you would), but more or less, just explain, the more open I am about my alopecia, and each person I can discuss it with,helps me cope better. And immediately, others will start to understand and accept it as well. 

I hope this is helpful, please message me if you would like to talk! :-)

Take care, and stay strong!!! ONLY BE YOU!!! xo

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