Today my boyfriend warned me that he could see a spot. He knows how I obsess over each new spot and he also knows that if anyone but him pointed out a spot to me I'd probably brake down. I've been dealing with some other health issues so my defenses are way down.
Every since I was diagnosed I've been losing hand fulls of hair in the shower. I've taken to washing my hair less with the idea that out of sight is out of mind but the other day a CHUNK fell out. I felt hope die a little. I know that so many people have it worse than me. I know this and I have pretty much felt guilty from day one when I cry about it. It has been pointed out to me countless times that it's JUST HAIR but I've also noticed most of the people who are saying this to me have hair. Lots of hair, evenly spaced out all over their heads. Today a co-worker said that one day I'd be able to look back on this and learn from it. What will I learn? I already know that true beauty doesn't come in the form of hair. Knowing this doesn't make it easier to lose it by the hand fulls.

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Comment by Lori Villa on June 10, 2009 at 12:25pm
I agree with you.. I was dx with aa just 2 weeks ago and im so obsessed with every hair that falls out. I love it when people say it's only hair..Yeah thats easy to say..Lori
Comment by lynne on June 10, 2009 at 1:24pm
hello dont listen to any1 that says its only hair, i lost most of mine 8wks ago altho i have some growin bak i have felt awful since, mines was very quick, lost most of it within 2wks, not much can be done wen it falls out so fast, i know u must be feelin awful at the moment as i still do, i think its the worst thing that could ever happen and wen people say it could be worse i want to scream how the hell can it be, im sorry if i sound horrid but its the way i feel, hairloss is one thing i'll never understand, i mean even doctors find it hard to understand so how r we suppose to, i hope ur doin ok tho, im here if u nd a chat, take care x
Comment by Izzy on June 10, 2009 at 2:27pm
hey!!! Just wanted to let you know people used to tell me that all the time its just hair... and I would look at them and say ok if its just hair how come in the mornings you spend hours fixing it... exactly its not just hair!!! To a girl hair makes us feel better but when we don't have hair its like ok... what now.... Trust me every day that goes by it will get easier... sometimes I sit at night and just cry to my husband because I don't have hair... But he looks into my eyes and says sweetie with are without hair I'm ganna love you the same... and Hair doesn't make a person ... whats on the inside is what makes a person!!! I know its hard I really do I have never had a full head of hair and when I would start to lose it I would do the say thing as you. I wouldn't wash my hair every night cause I didn't wanna see it come out. But I went to my doctor and he said you cant stop whats ganna fall out .. and that's the truth!!!! Just keep your head held high and know it will be ok!!!!
Comment by eva on June 10, 2009 at 5:29pm
hey Kat - all i can say after having AA for almost a year, is basically what cyndle said - each day will get a little better. i still have bad days and weeks, but for the most part i feel like it's made me a "better" person and helped me to look at the really important things in life. not gonna lie, it f-ing blows - but just try and remember that it's gonna do what it wants to do and stressing about it is only going to make you miserable and not help anything... i hope that helps even a little...
Comment by Magan on June 11, 2009 at 1:45pm
I'm new here as well...But had two bouts w aa with in the last 2 years. I also have some extenuating health circumstances...some other autoimune disease...they just don't know which one. But this last time I'm loosing much much more and not just on my head. I understand the gut renching feeling to look in the mirror and realize what came to be an amazing, constant, reliable friend is slipping away...and not necessarily slowly. I have to get to know myself again. I've unknowingly defined myself by my hair for as long as I can remember, as many woman and men do. I too understand the guilt. And the stupid people. I think that those two things are my greatest struggles in this journey. I propose to you that we know in our heads that beauty comes from w in, but it needs to work its way to our hearts for it to be real and to ''learn from it'' as your co workers so insensitively put it. My heart hurts to read and understand the pain your going through. I hope that at some point today you can find a break from the turmoil to be able to smile and see a glimps that it'll be ok. Better then ok.

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