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Comment by itzmejudy on January 11, 2015 at 9:26pm

I have lost and regrew my hair 3 times and am now going through the loss again. I also have several Autoimmune diseases besides Alopecia and they come and go too.  I have not been to Derm to get treatment but will go soon to see if I also have scarring alopecia. Yea losing hair will happen off and on probably forever. I use Minoidil also and it works most the time but can take along time and doesn't stop the hair loss forever its a treatment not a cure. There is no cure so far.

Comment by femmemuscle on January 9, 2015 at 7:54pm

ugh!  i really want to believe that when my scalp itches, that i will have a great big voluminous head of hair when i awaken.  I even used to have dreams about having this gigantic curly afro, or a long, flowing mane. 

I definitely remember before the repeating hair fallout, my scalp would itch like crazy.. but then again, it would also itch that way when my hair started growing back in again.

I don't know what to think anymore, but whenever my SO sees me scratching my scalp, he gently taps my hand and says "Okay, stop!"  He's an alopecia sufferer as well.  He gives me the old gypsy-esque stare and says in an apocryphal voice: "My scalp used to itch like that too, before all my hair fell out.."  I expect him to hiss, spit and give me the evil eye whenever this happens.

So far, the REST of my hair has grown thicker, (thanks to Megatek been using it for about 2 years. They used to use it on horses, but folks are finding out it's just a protein conditioner), but those stubborn bald spots.. the Right temple, crown and nape take their dear sweet time growing in, if at all.

I've also noticed this itching with Minoxidil for the last 2 months - but certainly not in the place where it SHOULD be working.  The minoxidil spreads out from the target areas, and get this, the hair that is not affected with alopecia - grows more with the Minoxidil while the affected areas are pretty much the same.

If your hairs going to fall out it, it will.  There are just some days i can't tell if it itches because the Megatek and Minoxidil are working, or if i'm getting ready for another "let down"..

Comment by itzmejudy on January 7, 2015 at 10:24am

Steph You have important things to say and should continue. A misunderstanding is no reason to stop. I sometimes get understood because I didn't express it the way I meant it, and I have made a few people upset. I just explain and say I am sorry and move on.. So we are good and please continue to participate.

Comment by PamFitros@boldlybaldwomen.com on January 7, 2015 at 9:39am

Shane, if there is one thing I've learned about alopecia through my research with other women it is how incredibly fickle and unpredictable it is. We are never 'cured,' just confused. I sometimes grow a couple of hairs back in the winter time in odd places on my scalp or face or ears that drop off again without rhyme nor reason. So, when I see them coming (not for a couple of years now) I shave them off. I much prefer the total bald look to the mostly bald look. 

I found peace when I stopped believing a few new hairs meant I was done with alopecia and it would all come back and stay back. Getting to that place, however, is a process not an event. It takes whatever time it takes to grieve the loss of something so intrinsic to our self perception. And acceptance of the life long merry-go-round of alopecia comes to different people at different times and different ways. Some people choose to never accept it or, for whatever reason, are unable to accept alopecia as the life long companion it is. I worked through the grief and came to acceptance quickly because I didn't want to keep hurting over and over again for the same thing. But that's me - a really low tolerance for pain, physical or emotional, and a big fan of letting go of things I can't change. Everyone is different, in different circumstances, with different tolerances, and different methods of coping.

You'll find your way, Shane. This is a good place to take a look at the route others are taking and see if anything resonates with you. This is a good place to let it out when you're having a tough day. And those who tell you you're not alone are right...you are not alone.

Comment by steph on January 7, 2015 at 5:08am

I'm sorry, I think it's a misunderstanding, I was talking in general terms, and simply offering support. I'll remain silent as that would be safest. I think the process is difficult enough (I'm talking about this from my personal perspective to clarify) without me causing others anxiety through misunderstandings that are unintentional. Best I keep my thoughts close to myself and return to being a non participant. Sorry for the misinterpretation.

Comment by itzmejudy on January 5, 2015 at 6:43pm

Steph  I wasn't talking about others, I was talking about myself and how I am dealing with things. I cannot tell others how to handle their problems. All we can do is talk about what does or doesn't work for us. I am not telling anyone chins up except to myself. I was just venting about how I felt at that moment. I was saying I need to grow up not anyone else.. I am sorry if you misunderstood. The only part that was to you was "you are right" and the rest was about me.. Again I am sorry you misunderstood. 

Comment by steph on January 5, 2015 at 6:17pm

@itzmejudy, hang in there. We are each on our own personal journey and unless you can say first hand that you have walked in our shoes, all the 'chin ups' in the world just feel hollow. It's not about being 'grown up', it's about finding what gives us the strength to get up and face the world. If I had the answers to how we can patch our broken self esteem id be an international guru on the speaking circuit! (Next year maybe ;)) xx

Comment by Mommito3 on January 5, 2015 at 11:38am

My doctor prescribed a shampoo for me to use. It cleans the scalp. I've had good results using it. My hair has been falling out as well at a rapid pace. The Dr also told me to use loreal shampoo for hair falling out. Wishing you the best of luck!!

Comment by Tracyhah1026 on January 4, 2015 at 8:48pm

I believe that each case is different. I've read about some losing all their hair and some having spots that grow back. Jazzy's grew back. Even though we were using the steroid cream I don't think that's why it grew back on its own. Jazzy lost her eyelashes a yr before we knew she had it but they grew back before we noticed a bald spot on her head. I don't think we can let it defy who you are and what you want to do in life. Keep your head up and try not to let it get you down. Blessings Alopecia World!!!

Comment by itzmejudy on January 4, 2015 at 6:10pm

You are right Steph. One day I think I am ok and the next day I am in tears. Iput some over the counter cortaid cream on and it helped alittle but then what little hair I have looks all greasy so I am stuck in the house. I still can't get myself to put a wig on and go out.I know that everyondy yet. The reality sucks and the depression doesn't help. I hope once I see Dermotologise will know I have a wig on and make fun of me. Not very adult of me is it? I just have to make myself do it but not reat things will get better but I know there are no guarantees. Thanks for letting me vent.

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