Alopecia World
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International Alopecia Day is Saturday, August 3, 2013!
International Alopecia Day ® is – Saturday, August 3, 2013! Be a part of this year’s YouTube video slide show of International Alopecia Day around the world!
International Alopecia Day began several years ago. My idea was for there to be a day when people with Alopecia Areata could celebrate who we are, and perhaps try going out in public bald for the first time in the company of others with Alopecia. The more cities and countries we have participating each year, the more IAD will become a NEWS EVENT that the media will want to report on. Media coverage = awareness!
What began as a small group on Alopecia World now draws participants from throughout the United States and around the world. International Alopecia Day is a day for gatherings, large and small, of anyone with Alopecia, their family, and friends. People decide what will happen where they live – some have staged public walks, pool parties, restaurant gatherings, and awareness tables at malls. Other folks have simply taken a photo of themselves alone, or with a friend. It’s up to you!
It’s SIMPLE. Just take a photo of yourself (alone, with a few friends, or with a group) on August 3.
IMPORTANT: Please make sure the photo(s) are not a small size. Photos taken by telephones are sometimes too small to drop into the slide show. Also, make sure that everyone who is in your photos agrees and understands that the photos will be online on YouTube, Alopecia World, and Facebook.
It’s even better if you make a hand-written sign that says “International Alopecia Day 2013” and your city (and country if outside the United States.)
You can email your photos to: internationalalopeciaday@gmail.com OR send them in a message via Alopecia World.
Here’s last year’s video: https://www.youtube.com/watch?v=SiqLx85aFDk The earlier videos can be found on YouTube by searching for “International Alopecia Day”.
Whatever you do on International Alopecia Day, wherever you are, you are part of a world-wide community. Your photos will show the many different faces of the approximately 2 % of people who have some form of Alopecia Areata! Celebrate us!
Updated anticipated participation list:
Australia
Brazil
Canada
Chile
Colombia
Denmark
France
Germany
Hungary
Ireland
Italy
Japan
Kenya
Mexico
New Zealand
Nigeria
Peru
Portugal
Serbia
Spain
United Kingdom (Scotland, Wales and England)
United States
To get started, please join the International Alopecia Day Group here on Alopecia World. Here’s the Page: http://www.alopeciaworld.com/group/internationalalopeciaday Next, you can start a discussion or post a comment within the group about what you’d like to organize where you live. There is also an International Alopecia Day group on Facebook.
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UPDATE RE SENDING IN PHOTOS:
You can either send me photos in an Alopecia World message, OR you can email them to:
internationalalopeciaday@gmail.com
I'd like to have them as soon as possible after August 3, preferably by August 15 because I'm going to be unable to work on the video between August 16-30. I hope to complete the video slide show the first week of September.
Can't wait to see them all!
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Comment by Nuni Ta on July 10, 2013 at 8:59pm
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Where do we have to send the pics?
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Comment by Mary on July 10, 2013 at 11:33pm
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There are a couple of ways to get the photos to me (I put together the video). You can attach them in a message on Alopecia World, you can post them on AW and I'll download, or you can send to me via the IAD Facebook group. Thanks for the question!
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ok, i will post it on facebook, so you can download it.
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Great!
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EVERYONE: make sure your photos aren't a really small file size. Some of the photos in earlier YouTubes were blurry because the photos were less than 100 KB. So, if you're taking with a phone, be sure to make the file as large as you can so they're nice and sharp when put into the video. Bigger is better. Thanks!
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Comment by Dorothy on July 11, 2013 at 10:19pm
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I am not trying to be rude, but I would like to point out something you said that absolutely drives me nuts, I have AU not AA, and when people refer to Alopecia as Alopecia Areata, I feel like my AU which is so much more is being discounted and belittled. AA is one thing AT is another and AU is something quite different altogether in my book, it was one thing for me to get used to the lose of the hair on my head, but the loss of my face quite another. As I said I do not intend on being rude but for years I have listened to and been grouped as AA and I am not AA I am AU. Quite honestly, I feel like I am being left out of a group that is supposed to have my back, because when AA is mentioned to me AA is only being addressed whereas if simply Alopecia were mentioned then I feel all forms of Alopecia are being addressed.
Touchy I know, but I have been dealing with this for over 40 years and I hate it just as much today as I did the first day it started happening. Wrong place to post, yes, but I saw what you said and I just could not ignore it any longer, sorry.
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Dorothy, I don't feel you're rude. Believe me, I've struggled with the "correct" way to refer to what I/we have! I am AU, and have been for over 5 years. I was AA for 7 years, then quickly transitioned to AU. BUT, I have some nose hair and have had eyebrows and lashes a couple of brief times. Despite my current nose hair, I consider myself AU.
After being corrected by various people when I referred to my disorder as simply "Alopecia", I started using the full name of Alopecia Areata. At the recent NAAF conference (my first), some of the official speakers always used both words, others used "Alopecia". It's a confusing and conflicted topic, and I think it would be a good discussion for us to have on Alopecia World. Many of the people at NAAF were AU, but I didn't hear anyone use that term.
My personal preference is to call what we all have "Alopecia", as I did for most of this post, and as the name of the event refers to it. When I tell people what I have, that's the term I use, though I often go on to explain that I have the most severe form, Alopecia Universalis (I would never say "Alopecia Areata Universalis", which just sounds redundant to me.)
Hope this helps.
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Comment by Alanna on July 12, 2013 at 11:13am
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Thank you so much for doing this Mary and Cheryl.
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Thanks! Take one of your beautiful self on August 3, and I'll include in this year's video!
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UPDATE RE SENDING IN PHOTOS: You can either send me photos in an Alopecia World message, OR you can email them to:
internationalalopeciaday@gmail.com
I'd like to have them as soon as possible after August 3, preferably by August 15 because I'm going to be unable to work on the video between August 16-30. I hope to complete the video slide show the first week of September.
Can't wait to see them all!
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