Hello everyone,
I just wanted to start out saying that you are really a bunch of beautiful people! With and without hair! I’ve been admiring you’re photo’s and reading your blogs, and I’m really drawn into you’re openness. I’m truly amazed by some of your willingness and creativity to try different things. Whether it’s baring it all, wigs, tattooing, etc… Just illustrates how ones true beauty is really not skin deep!
I truley appreciate reading everyone’s blogs. Especially the responses and experiences folks have had from family and friends. It’s really allowed me to “normalize” my thoughts and experiences.
I’ve been struggling with bouts of depression, anxiety and anger at people for the way they were making me feel.
Reading these entries over the past year has been a cathartic feeling for me and extremely beneficial and some what liberating. I find myself reading random ones a lot just to see what people’ thoughts are like. It’s kind of like a barometer of my own consciousness if that makes sense.
Thank you!
My turn… I'm finally admitting I have AU!
I’m currently 43 and I’ve been struggling with AA/AU my entire life. The past 30 years or so have been relatively easy to deal with as the hair loss was always concentrated to my limbs. Very rarely did I ever experience any loss on my head or face, and re-growth was almost always certain. I would just be patient and within a few weeks it was back.
I really can’t remember ever feeling anything negative as a child or adolescent or teen.
However, these past 2 years have just been a down hill experience.
I’ve lost the hair on 95% of my body, and approximately 65% of my head. One eyebrow, all my eyelashes and spots on my beard area are the latest casualties. People’s reactions to my hair loss have been mixed, close family has been supportive, other acquaintances and some “prior” friend’s responses have been detestable. I really can’t believe the amount of vile, negative things I’ve heard. I realize some are just poking fun, while others are really loathsome. Needless to say, I don’t speak to them any longer and avoid contact whenever possible
Over the past 20 year’s I’ve tried every concoction, medicine, or holistic treatment you could think of. Only result was making my wallet ever lighter and my hopes dissipate. All in all, I’ve yet to find the magic bullet as I’m sure the rest of you have experienced as well.
Last June*2009, I decided to shave my head and get my eyebrow’s tattooed. It’s been helpful but I’m still not happy with the results. As I feel “unnatural”. I can’t describe it eloquently, but I feel like a fraud. I wish I could just be myself.
Yet the negative comments I received from others were too overwhelming to deal with having “Just one eyebrow!
All in all, the biggest thing this condition has taught me is patience. I find myself being more tolerant of timelines and acceptance of slow change.
Hopefully 2010 will be a better year for us all!
Peace,
John
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