My hair started falling out in December and in January I was diagnosed with alopecia areata. I now have 6 patches. The only treatment I'm doing right now is a topical steroid cream that I apply twice a day.

I'm concerned that my doctor told me there's no cause and no cure, but when I look online, I see people talking about vitamins, stress management, etc. Is there some special shampoo or hair treatment I should be using? Does stress make it worse? I don't feel stressed. Well, losing my hair is stressing me out. That's quite the vicious cycle!

I'm trying to stay positive about the whole thing, because really in the grand scheme of life, what does it matter? I don't have cancer, I'm not dying from it, my kids and husband are healthy. I try not to complain, but inside I really want to. I just feel guilty about wanting to.

I'm glad that I found this site. My husband is very sympathetic, but doesn't understand and all he says is, "You'll be all right." Well meaning, but totally useless to me.

At what point should I start to worry about losing all my hair? Is 0-6 patches in two months normal? I swear, every time I have an itch on my head, it throws me into a panic!

Views: 35

Comment by Sarah McA on February 9, 2010 at 7:05am
Hi Suzanne,

Welcome to Alopecia World. I first found a tiny bald patch on my head in August. I had a french braid done in my hair a few weeks before and the hairdresser had pulled on my hair so tightly I thought she had pulled some of my hair out. Over time though, the patch got bigger and in Dec I noticed another one. In January I started to shed, which hadn't happened until then and now I have lost almost all my hair. I understand how you must be feeling right now, but you have the exact same attitude I had. There are people out there with terminal illnesses. At the same time though, you wonder why this is happening to you and what you did to deserve it. I tried steroid cream and to be honest, thats when I noticed my hair getting worse. I'm not sure if you have been to your doctor yet but I would suggest getting some blood tests. I got tested for diabetes, protein and iron deficiencies and I also had my thyroid checked among a few other things. These things can sometimes be the cause and its always better to rule them out. My tests came back normal so I am putting it all down to stress. I now have 2 wigs and I feel so much more confident with them I refuse to let alopecia get me down and hope that this condition will make me a better person. Sure, I have my bad days but thats when I find this website helps.

If you ever need to talk, please feel free to drop me a line

Sarah
Comment by Suzanne Kennedy on February 9, 2010 at 10:12am
Thank you, thank you, thank you. Bad night last night after I found another spot. I needed that this morning!
Comment by Rick Seymour on February 9, 2010 at 3:00pm
Suzanne K you mentioned itching your scalp (wait, sorry, good luck and keep good thoughts), being new myself I have not seen that mentioned very much. Mine itches at night for some reason, does this happen to others out there as well, just the itching. My wife has woke me at night and told me to quit scratching so hard I guess I get so carried away with scratching "the spots" because then I have gone and looked and it looks fingernail marks all over.
Comment by Suzanne Kennedy on February 9, 2010 at 4:10pm
My doctor told me that it itches right before it falls out. Of course, when he told me that my entire head started itching!
Comment by Sarah McA on February 9, 2010 at 4:13pm
Rick, I noticed that my head would itch like crazy just before my hair fell out and it was always at night when I was in bed. But I was also told that your head itches when hair is growing back..it's a confusing one
Comment by Rick Seymour on February 9, 2010 at 4:33pm
I knew it!!! It itches because its falling out while growing back 8^) 90% itch is in the area where there is nada
Comment by LeslieAnn Butler on February 11, 2010 at 6:50pm
Hi Suzanne,
There are no vitamins, shampoos or snake oils that will cure alopecia. At this time, sadly, there is no cure.
You can find out more about treatments in my book, "If Your Hair Falls Out, Keep Dancing," including some very interesting "cures," like the man who was told to put urine on his head! (find out more on my page.)
Stress, illness and hormone changes can be triggers, but of themselves don't cause alopecia. I am here to help, so let me know if you need advice or support. And...your children are beautiful!
LeslieAnn
Comment by Suzanne Kennedy on February 11, 2010 at 6:55pm
Thanks LeslieAnn!
Comment by George Ortiz on February 27, 2010 at 9:04pm
You might want to google the Marshal protocal it is a hypothosis that gives controversial yet informative explanation for the cause of autoimune desease, also you might want to read up on white blood cells, and how they function click on the link below for further info on that, and yes for me stress and lack of sleep did seem to play a big part in excelerating my hair loss. I promise it is enlighting when read in conjuction with the Marshal Protocals theory. http://en.wikipedia.org/wiki/Phagocyte

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