Comment by You can do it : ) on July 24, 2012 at 11:06pm

Firstly, DONT SAY SORRY THERE IS NOTHING TO SAY SORRY FOR. I am sorry about your dad, people don't dislike you because of your alpecia you have to remember that. Try to find a suport group in your area or try journaling (that helps me get my feelings out.
Good luck

Comment by Alex on July 25, 2012 at 12:27am

Don't be sorry!!! This is exactly what this website is for!! It's a place to celebrate our accomplishments and complain about our crappy days. It seems like you're going through a rough time, but don't worry! This, too, shall pass. I don't want to say that I know what you're going through because I don't, but you'll get through it. I recently realized that many people go through many of the same struggles. We just have one more to deal with. I would try to put it into perspective. Just by reading this post, I can tell that you are an amazing and strong person. You have enough courage to share what you are feeling. Now, you just have to take it day by day and try to find some solution to your issues. If you don't feel like you have someone that you can talk to, I would try to find a local support group. It's amazing how just talking to someone going through the same things can make you feel so much better. Sometimes all you need is someone to listen to you vent. Stay strong, girl!! You'll get through this and be a stronger and more courageous person for it!!!

Comment by Julie on July 25, 2012 at 12:47am

Thank you all :) you're all so kind.

Comment by Marinetta on July 25, 2012 at 7:55am

It's important to remember that It's ok to ask why me! you can't disregard your emotions just because someone else might be worse of, you have to handle and process your situation. If it cheers you up use "it might be worse" but sometimes the worst thing is to hear "it might be worse".

Have you tried talking to your family about how you feel, they might not fully understand but it might help you process. They might even try to support you the best they can.

And don't be sorry, thank you for sharing! If no one shared, we would all be/feel alone!
let me know if you need to talk!
My dad is like your dad, never shows up for anything. this yeears is the first of 10 that he remebered my birthday, I got a text. Don't mistake your dads lack of commitment with anything you do (alopecia or other) that's his issue and stuff do deal with!

Comment by Kayla on July 29, 2012 at 6:13pm

Oh gosh, you talking about your childhood and not being able to do thing's like the other girls did made me tear up a little, it's so familiar. Don't let Alopecia ruin your chances for a relationship, I met my husband when I was 16, and he loved and accepted me even though I wore a wig and for a long time refused to take it off around him, only recently have I gotten comfortable enough that I will take off my wig at home and not wear it in his presence (And this is after two kids!).

No, your feeling's aren't uncommon... I have an older sister who has beautiful long blonde hair that stretches to her midback and it feels like she just doesn't appreciate it because it "doesn't do what she wants it to" Lol My siblings never really understood either, especially my mom. Don't feel guilty that you feel this way, its definitely a part of it, and it's not your fault.

Never give up hope for a cure, and vent and rant as much as you want, that's why we are here, so that we can all help support the hurt that each of us goes through with this condition.

Comment by Erika on July 30, 2012 at 12:21am

I read your story and every word you said i feel why me..? no one understands me or how i feel..? and I feel I should say something to help but I can't I am still going through it.. It has only been 2yrs and it feels like a life time. i had long beautiful hair and now I have nothing... I have a daughter that has the most thick, curly hair that I would do anything to have.. but I don't and everyday I wish I could have it or have the feeling of washing it again but it just seems like it wont I wonder if it will ever get better I hide most of the time so people don't see me or know I really feel that it is me that has the biggest problem with it in a way it made me feel beautiful and now I don't... people say there will be a cure and don't give it but when I went to the dermatologist he said its been around for 40 years how do you still keep hoping...

Comment by Deejay on July 30, 2012 at 9:31pm

I know how you feel! I developed Alopecia 20 years ago at the perfect age of 17. I've never had the priviledge to have a full head of hair or get to try all the great new hairstyles as a teen or young adult. I've been heartbroken 8 times in my life and have not been able to sustain any kind of relationship because of my insecurities with alopecia.I remember telling my mom over and over again that i was losing hair. Everyone said.. "its just hair" no one took it seriously. It seemed like my family was going through worse things than a few bald spots on my head.I dislike when people say "its just hair" alopecia is not a terminable disease, it's just one that will allow you to live the rest of your life in misery and ruin your self esteem. I've spent my whole life asking "WHY ME??" My father passed away at 70 with a full head of hair. No one in my family has this disease. They all have more than perfect hair. I've been online everyday since i joined this website. I don't feel so alone. At 37 i've dread being an old woman with no hair. (i don't wear wigs). I'm just learning to live life without the bitterness and anger i've accumulated all these years. I think you're a very brave young woman and you should never feel like a bother telling your story. That's what we're here for. :)

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