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Profile Information
- About Me:
- Current Mood:
¤%/&/()(&%%¤# This last year has been a bitch I hope the next 12 months will be better.
I lost my job fall 2012, luckily I got another job early spring 2013. A really good job, the only thing I didn't like was the fact that I kept my alopecia a secret and wore a wig to work. Unfortunately my company went bankrupt in June this year. So now I feel even worse. This time around I'll not wear a wig, and be as I am from the start.
Current State:
A year has passes since I had any hair to speak of. I have maybe two strands left.
I'm thankful for living in Sweden where people keep to themselves, they might look or even stare put it is very "unswedish" to approach a stranger unless to ask for directions. Unless they're drunk of course. Therefore I take parties and pubs in small doses. I don't want to feel trapped by my lack of hair and I try to push myself everyday but their's no point denying it, it sometimes feel like a prison.
My story:
S 2011 I noticed a small spot and went to the doctor. He said "That's life, it happens" and that was that. The hair grew back and life was back to normal.
But during the winter and early spring 2012 I noticed thinning by my temples and my ears. By the time I got to a NEW doctor I had lost large amounts of hair and had bald spots here and there including really big ones above my ears, half and eyebrow and the lashes on the same side (I looked a bit lopsided). She did a lot of tests (nutrition etc) and was a bit upset with my previous doctor that hadn't taken me seriously. She said what I already figured out by google-ing, I have alopecia. My doctor sent me to a dermatologist who was less informed than I and just sent me off with unanswered questions and my "wig and brow-allowance". Another good thing about living in Sweden (unfortunately not nearly enough to cover the cost of a quality wig).
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
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Marinetta's Blog
Where is the play button!
Posted on September 12, 2013 at 12:00pm 2 Comments 0 Likes
I've been trying to handle my hair loss, taking the bull by the horns so to speak. Telling my self "I can handle this", "I'm going to be fine" (fine as in all right not as in it's going to grow back). Pragmatic, realistic, positive. It's very typical me.
But I'm fed up, tired, like i got the wind knocked out of me. I'm not fine, I'm sad.
It's been a year since I lost my hair and I feel like my life hit a wall. Someone pressed the pause button that day, and I can't find play. I…
ContinueTurmoil of feelings!
Posted on October 31, 2012 at 5:39am 3 Comments 1 Like
I've been extremely honest with my friends, sometimes even pushed myself a little bit too hard. I push myself to be ok with this and most days I can accept it or forget about it. But I'm never happy about it. Sometimes I realise I don't have any hair or catch a glints of myself in the mirror and I get sad. Most days its fine but once in a while as I said I get sad.
I walk around like I have a full head of hair, not pretending that I do but like its the most natural thing in the world…
ContinueFirst day with a wig.... time to shave
Posted on August 3, 2012 at 3:31am 2 Comments 0 Likes
Yesterday was my first day with a wig, it was extremly uncomfortable. A really pretty front lace synthetic shoulder length dark brown. I guy at work said "someone whent to the hairdresser, Nice!". I should mention that last week I had a really short light brown haircut. So they don't seem to care or notice.
However pretty I looked I felt horrible, uncomfortable and just wanted to flush the wig down the toilet. But i couldn't because underneath was my horrible patchy unflattering…
ContinueStill don't know how to handle work
Posted on July 23, 2012 at 8:00am 11 Comments 0 Likes
So I just got a new job a few weeks ago and a probable diagnosis from my doctor (waiting to see my dermatologist) but all the tests so far support her conclusions.
Still this is very new to me and my hair gets worse every day. I will probably not wear a wig around family or friends but I've been fitted for one just in case I feel I need it.
The issue is now how do I tell people/boss at work, do I tell them. I don't want them to jump to conlusions about my health but I also feel…
Continue
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Sweety trust me it only gets better and better. there will come a day that you truly won;t worry about what people say or do or think..in fact a very wise woman i know called Etoile said to me " what people think of me is none of my business".... There will be a day when if you feel like a scarf,or a crazy wig look or one to just feel "hairy" one day ...you will be able to switch back and forth with much ease. I have new hair growing since a cortisone shot in my knee..go figure...I went to Mexico and was so hot that i could not support a scarf or a wig....so i just took out my razor and "bob your uncle" ...funny now i just feel like me again!!!who would have thought...have a great !!!
Hi Marinetta, I've just re-read your story and was wondering how long it took for your to get to a dermatologist in Gtb? For me it was 2 years, and just to learn that no help to expect
CONGRATULATIONS.....bravo for taking this big step...it is really a great confidence builder
Hello and welcome, Marinetta!
How are you today?
Leslie Ann