Alopecia World
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Mourning the loss of my hair
So, I am officially a member of Alopecia World....Just recently, Alopecia invaded my world.
It was a Friday, right before Christmas when I began complaining that my head felt sore (like it had been up in a tight ponytail). A few days after Christmas (Tuesday), I noticed an excessive amount of hair come out when I was rinsing the shampoo. The next day I noticed a single bald patch on my part. Thursday, when I was rinsing my hair, a CLUMP fell with a splat and I screamed for my husband. We both stood in disbelief at the wad of hair on the tile. Now we could see 3 bald patches on the top of my head.
A week later, I was able to see a dermatologist who confirmed my fear....it was Alopecia Areata. I started my first round of cortisone shots that day. I cried through the whole process, not so much for the physical pain, but the emotional pain I was feeling. I was thinking that I would rather have my arm cut off then lose my hair.
The month of January was all about finding ways to comb over my hair to hid the bald patches. Now, it's February and I have surrendered to wearing hats. Every day, I find new dime sized patches throughout my head. I assume they will also grow to half dollar size like the rest....exposing more and more of my scalp.
I continue to mourn the loss of my hair....I am so sad.....
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Comment by Karen Smith on February 23, 2012 at 8:32pm
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It is a terrible loss. Be prepared and go buy a wig or topper. My daughter went through this her senior year in highschool. Alopecia can be cruel. She is AU today but off at college living a happy full life. She wears beautiful wigs. Really tough at first but as she said to me "you have to find a way to be happy no matter what happens to you." Hopefully the shots wil work.
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Comment by Michele on February 24, 2012 at 12:07pm
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Thanks Karen~ I am so sorry to hear about your daughter. I can't imagine going through this at her age. What a strong girl! Thanks for your advice. I have an appt. to see the "Wig Lady" in our town. I know it will be good for me to see the wigs. All I can picture right now is looking like an American Girl Doll.
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Comment by Molly on February 24, 2012 at 4:37pm
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Hi Michele, so sorry you're going through this. I'm in a similar boat, and have been getting the shots for 5 months. I'm still losing a lot of hair, but the oldest spots are growing in for me. We live reasonably close, what shop are you going to? I'd be interested in what they have to say. Good Luck!
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Comment by Marija on February 24, 2012 at 5:40pm
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HI Im sorry that you are going trought this. I know how you feel my hair started falling out 9 months ago and in 3 weeks it all fell out at first doctors didin`t knew what was wrong and they said it is stress. 4 months ago they said it is alopecia ,my hair grew back over the summer and now it is still falling out every 3 to 2 weeks i go for shots.Things are getting better now you just have to stay positiv and optimistic. I hope it gets better for you.
sorry for my bad english I`m from Croatia
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Don't get discouraged with the wig. It is a learning process. We are happy to help.
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Comment by Leslie Mader on February 25, 2012 at 7:28pm
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My heart aches for you I also went through AA for 4 yrs on and off. I had re-growth after losing at about month 5 and then it would start all over again. I am now AU as of last August 2011 - ugh, i hate it but have to deal with it. I guess i have to be happy too that i didn't have to go thru this when i was younger - i can't even imagine. But no matter what age is devastating.
The best thing you can do is to find a wig that looks like you and you feel confident in - it will take alot of stress off your mind! I hope you better days! :)
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Comment by FooFoo on February 26, 2012 at 4:17pm
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I am so sorry also that you are having to go through this. I was diagnosed with frontal fibrosis alopecia last year, my hairline is slowly receding back. I to am having a hard time dealing with losing my hair.! I just pray for all people that have to go through this.
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Comment by Kathryn on February 26, 2012 at 10:25pm
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Hi Michele,
I, too, am sorry to hear about your hair loss. I first started to loose my hair last March/April, and it is devastating. It is such a helpless feeling, especially when there are so many variables with this condition. It's different for everyone, and so hard to predict. I remember wishing I had a "real" medical condition, because then I would feel justified in my terrible grief and depression.My hair loss progressed to AU. Now I wear hats around the house and a wig when I want to "look nice." I will say, there are nice wigs out there. I spent too much in a panic on a synthetic wig that never worked out for me because it made me itch. However, I have since invested in a human hair wig that looks much like my old hair. Most swear that they cannot tell it's a wig.
I hope the shots are effective for you. No matter what happens, it does eventually get better. You have support here.
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Comment by Deeds on February 27, 2012 at 10:30am
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Hi. I am sorry you are dealing with this. I have scarring alopecia. I have been wearing a wig for 7 years. It has its frustrating moments, but with time it will feel part of you. I am here if you want to chat. I have found this website to be amazing. I never knew there were so many people who deal with the same issues as me. Best of luck. You're beautiful.
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Comment by Mary on February 27, 2012 at 7:26pm
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Hi, and welcome to this wonderful online community. Sorry you're going through this, but you're not alone. Check out my photos and blogs - you may find something that will help. That's why I've posted it all. It's just over 4 years since I lost it all, and life goes on. Having no hair is the least of my problems, but I know exactly how you feel and you have to just take it a day at a time.
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