I posted a rather upsetting blog yesterday and I noticed today that it "mysteriously" disappeared. I don't know if someone asked that it be taken down since it was kind of a very telling blog or if the website somehow deleted it. I don't know but I want to apologize if it hurt anyone to hear how upset I am and how badly I am handling the scalp pain and not liking myself or how I look. Today was a bad day. I had to leave work and may take a few days off. I woke up this morning with a numb and tingly left hand. This is a new symptom. My hands have been freezing and now the left one is having these weird sensations and tonight it is shaking on and off. I was told to cut my Lyrica dose in half and it's back to 6 more doctors next week. So, I want to say "I'm sorry" if I offended anyone by my blog. I was and am in a rough position with this pain and only wanted some help and advice on how to handle it. Thanks to those who had a chance to reply.

Views: 62

Comment by Mjay on October 11, 2010 at 7:19am
i hope youre okay hun xx
Comment by Galvin on October 11, 2010 at 12:32pm
Send a note to RJ or Cheryl about the missing blog. (((((((HUGS & PRAYERS)))))
Comment by Leah England on January 19, 2011 at 3:29pm
Julie, my head feels like it's been radiated, for god's sake. Like a constant bruised, sensitive, horrible sunburn. Let's compare notes! Med lists and treatments etc.! I have pain and numbness in my elbows, wrists and fingers. I never thought they were related, but the body is an amazing thing, who knows. I find the joint issues much worse when I wake up, after Ive been sleeping, you too?
Comment by Chefpam on January 19, 2011 at 5:07pm
Mine too girls but I also have psoriatic arthritis. I have been taking Curcumin (tumeric root) 5x a day and it has helped some!!
Comment by Leah England on January 20, 2011 at 2:48am
Chefpam, how did you get diagnosed with the psoriatic arthritis?
Comment by Devin on January 26, 2011 at 8:07pm
Hi Leah, I was also just diagnosed with psoriatic arthritis.
About 1 in 20 people with psoriasis will develop arthritis with the skin condition.
Comment by patricia mazzaro on February 11, 2011 at 9:02pm
Dear Julie keep hanging in there things will get better.It is a time process of getting answers as to wht is the cause of the symptoms.When you start feeling so down please push yourself totell a someone and if you are spirtual focous on that. Also try to think of all your positive things you have done in your own life. Any time you need im me nursepatty09@aol.com
Comment by patricia mazzaro on February 11, 2011 at 9:02pm
Dear Julie keep hanging in there things will get better.It is a time process of getting answers as to wht is the cause of the symptoms.When you start feeling so down please push yourself totell a someone and if you are spirtual focous on that. Also try to think of all your positive things you have done in your own life. Any time you need im me nursepatty09@aol.com
Comment by BTB (John) on June 5, 2011 at 3:46pm
I had a post totally misunderstood too was sending to my wife and some morally challenged person with an over active imagination complained without checking with me first. Post what your feeling and suffering if any takes offense at your suffering they really need help. Hope this post does not get removed LOL John.
Comment by Julie Koch on June 5, 2011 at 3:54pm
Thank you John! All I had wanted in my original post was HELP! I was having very negative thoughts and wanted advice. If people thought it was to depressing for me to post, then they should have just ignored it. For those that would have been able to help, they never got the chance because the post was removed by someone... Thank you for the support!

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