Well I have had an eventful year... GCSE year has caused me much greef because they arn't just Grades they are my ticket to moving out of my messed up home and moving in to one which i can finally say is my own... My family is completly messed up, involved abuse, death, liars and mental illness.
This year has been the probably one of the worst I have ever been through and then the diagnoses of Alopecia to top it all off! I know so many people go through it but i still feel isolated like noone will understand and i cannot even bare to look at my own head because it freaks me out!
I hate it when people who do not understand Alopecia make th diagnoses that its stress related and no matter how much you try and explain it to people they refuse to understand it and continue on with their useless information. I am not a Istress ful person i smoke shit loads of weed so im am calm as many!
I just want to know how other people stay possitive with this! Because i cant even talk about it without getting upset and i want to talk about it and get it off my chest... I found another patch forming and i cant even tell anyone! Can someone tell me if you experience the feeling of anger when you think about your hair and the self pitty you feel... I wish that it wasnt just mental pain you experience from this desease i wish it hurt more then in yourself because then i would have a reason to complain like those who suffer illnesses.
Help Me Autumn

Views: 21

Comment by Pat on June 15, 2011 at 11:40pm
My daughter was diagnosed age 19, my son age 28 - they think his was brought on by drugs and there is a link there but depression runs in my husband's family plus my own and I believe my grandfather had some mental illness undiagnosed as well as my hb's grandmother. My daughter was abused by her uncle as a child and I believe it stemmed from that. If we have a predisposition it comes out when the situation rears its ugly head. Yes it's been difficult not only for us but their lives have been severely affected by it.
Comment by Autumn Leaves on June 16, 2011 at 8:34am
Hmmm thats quite awful... sorry about asking just my mum was diagnosed at a youngish age and wanted to see if it was similiar for your children.... What drugs where they taking if you dont mind me asking? I am sorry about your daughter being abused... hurts everyone when its a family member i have had them sort of experiences before... And many people have mental illnesses that dont have it diagnosed which is pretty shit bbecause it makes it harder to see if the illness is heredetary and what the chances are that you can develop it... It is fantastic though that you and your husband worked through it together and helped your children... I think that in its self can improve the condition i wish i had the patience with my mum but its just much easier to stay away and only come back when it is neccesary if you know what i mean :)
Comment by BTB (John) on June 20, 2011 at 4:04am
With you all the way Autumn you got a family just like mine was it can get better but its not easy. I wish I had come to an understating of my situation as early as you have. Would have got my stuff together a lot earlier, we all have the right to feel our feelings and I love your honesty to share so openly it takes a lot of courage to do so. Well done John
Comment by Pat on June 20, 2011 at 4:44am
Autumn, with my son's drug taking he was on crystal meth and mj, but the crystal meth really took him over the edge. In his own words he took "copious" amounts! We have tried to hang in there with him, helped him out many times etc but now he has turned violent and we prefer not to be around him anymore. He is in denial about his illness and has stopped taking his meds. It's really a very painful situation but we are not willing victims of his moods anymore. Sometimes, like you say, you get to the point where you have to stay away from the person because they continue to hurt you and affect your life so much. My son is in his early 40s now. Lives in a shed, works off and on and has alienated every family member he has including his own son who is 13 today!! So yes I know exactly what you mean.
Comment by Autumn Leaves on June 20, 2011 at 6:53pm
Thanks alot john i suppose it was quite hard but sometimes you just need to like get it out and i prefer typing it out then saying it face to face with someone if you know what i mean :)
Comment by Autumn Leaves on June 20, 2011 at 7:10pm
Pat that sounds ezpecially hard! wow crystal meth is a harsh drug ive tried a few drugs before but never had that... its also bloody expensive... I havent had a drug problem but i smoke weed probably to much to be honest... and yeah my mum did the runaway thing for about 11 years on or off i dont remember her much before the age of about 10 and then i moved to England and waited for 6 months until she deciided to pop by because i had no existing family living in Australia apart from my dad who i was taken off... Then i met the scary family whom i was isolated from and thankful no matter how bad my young years where... Every single one of them has something going on whether its some form of mental illness, excessive drinking or un acceptance of their life... Quite depressing, i hate them all because when i came over they left me with a derranged Aunty who was worse then mother dearest.... Sucks big time and i can only say sometimes youve got to protect yourself by staying away and i know i will be hated but i have already made my decision and im leaving when i can afford it!
Sorry that was a big family rant!
Going back to alopecia my patch on the front of my head has clear hair growing so feel a bit possitive
Comment by Pat on June 21, 2011 at 1:21am
I hope your plans work out for you Autumn, sounds like you've been very unhappy with your carers....and that you've been more of a carer to them! Hey so glad your patch in front of your head is having some regrowth...fantastic!
Comment by Autumn Leaves on June 21, 2011 at 5:56pm
Thanks i hope they do too! And i am happy about my hair too but my head feels really itchy... Is your head supposed to be itchy?
Comment by Pat on June 21, 2011 at 10:19pm
Mine usually itched when I was losing hair but it may work the othr way too! Is it itchy where there is regrowth?
Comment by Autumn Leaves on June 22, 2011 at 4:15pm
I dunno Its was itchy when it was falling out and its still itchy now... I dunno if its growing back i think my head is pretending LOL

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