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My life
Hi my name is Rose. I have had Alopecia for almost my whole life. It started in 3rd grade. My parents found a great Dr who put me on a steroid and it all grew back. I only started out with 2 spots on the top of my head. The worst episode I had was when I was a freshman in high school I almost lost all my hair, I used to cry myself to sleep. Again my Dr put me back on the same steroid and it worked he never used shots. It wasn't way after I got married and had my first baby that I noticed my hair shedding so much, my old Dr had since retired so I found a new DR who recommended the shots which worked just as well. Over the years I would get a few spots here and there but nothing big. But since my Mom passed away it has become really bad. I shed so much in the shower, I feel it falling down my legs. I now have two very large spots in the back of my head now. I did recently see my Dr and she reassured me it would grow back. This time feels different. I actually dread washing my hair. And also having to go to the hair salon. My husband gets upset with me because I am ashamed, I hate the way the stylest stare and ask me a million questions. And when they wash my hair you should see how much comes out. My husband feels I'm paying for a service and they should treat me like any other person. But I get really uncomfortable. I always feel bad when i hear my sister and my friends talk about getting highlights and doing keratin and blowing they're hair out all the time. I can't do that even though my Dr said It's OK. I get nervous because I don't want to cause more problems. I have been trying Garnier fall fight shampoo and conditioner and It did not help at all. I would love to hear about any new products to use. I have family members who are hair dressers but they live far away.
Thanks
Rose
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Comment by Casey on September 22, 2012 at 1:55pm
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Im sorry you are having such a hard time :(. As for the salon, when I was first losing my hair I went in and explained and asked them to be gentle. They were super awesome!! I think you can do highlights (I think I did?) but I would avoid blowouts because all that brushing and blowdrying can pull out weak hairs
Are you doing any treatment this time? Since youve responded well before you will probably see benefits again
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Comment by Rose on September 22, 2012 at 7:09pm
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Thank you for the response! The only treatment I'm doing now are the cortisone shots. This is the first time that I have not been seeing any improvement at all! My friends and family laugh all the time because I have very think curly hair, and when I tell them what is happening they don't believe me! I have to be honest I cry every time I wash my hair:( I do the root touch up myself if some Greys pop, that's it. My cousin is coming to visit in Oct and she is going to give me a really short haircut! I know it doesn't stop my hair from falling out but it does stop me from stressing out more! When my hair is longer I feel it falling out in clumps down my back down the shower and I feel so depressed. Thank so much for the kind words!
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I am so sorry you have to go through this terrible experience! I know exactly how you feel, in the beginning, it was very depressing to wash my hair! I certainly don't want you to take this the wrong way, but multiple doctors told me..."if it's going to fall out, there's nothing you can do about it"...that was very difficult to hear and more importantly...to accept. My only dealing with this has been since April of this year! When I found my first to spots, that was on a Thurs evening and by the time I got to a derm, just a short 5 days later, my 2 spots had became 9. By that time I had so many spots they said they would not do the injections because the spots were too large...and too many! I did 2 rounds of the steriods along with topical cream and it seem to be working...until I finished the steriods, and again...it stared to fall (now worse)! I am SO sorry to hear of the loss of your mother:! (I lost my mom, Oct of last year) and it truly has been the most agonizing/emotional journey I've ever had to go through! I noticed my hair getting a bit thinner a few months after that, but no spots until this past April. In the beginning when I still had enough hair to go to the salon, lol, I was extremely nervous. I called the owner and explained my situation and the overwhelming feelings i had of being stared at, questioned and just feeling uncomfortable/embarrassed. He was kind enough to offer that I come in at 7 am...when he and his wife were the only one's there...I was SO greatful!!! I hope this helps:)
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Hi, I'm new to this web site I just found it yesterday. I also have alopecia areata and and am fighting the spots and losing hair. It is really upsetting. I was wondering if any one has been on predisone. The doctor put me on this steroid and it is not making fell well. I so want my hair to grow back but this medication is so strong of steroid. Has anyone had any luck with an oral steroid?
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Hi thank you for the responses! I decided to wait to see my cousin in Oct for the much needed haircut! And I'm so glad you informed me about not having the blowouts because when I did go to the salons before the spots came back I would always have them blowout my hair! My hair is so curly, so now I'm imbracing the curls and just wearing it loose almost everyday, I guess I don't know if I'm going to lose all my hair so I'm going to enjoy the fullness why I can. I have appointment next week for shots. My husband thinks I shouldn't wear pony tails? Any thoughts?
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Thank you Aimee I will. I called my doctor yesterday he said I should be taking the oral steroid with food. I really wasn't so I took half the dose today and ate and there were no side effects. I'm going to try the full dose tomorrow and see how I feel. I'm going to look up the site you told me a out.It's been so tough with this AA. I'm new to the web site and now
I know there are other people just like me out there. This is the first doctor who had ever prescribed an oral steroid before. I'm hoping it works. Thanks for your help!
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Comment by Sheena Tha Cody on October 23, 2012 at 1:13am
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I a hair stylist and im totally bald it drives me crazy when people bitch about there thin hair when they have a full thick head of hair. Its like complaining about being fat to a fat person when your really skinny. Or complaining about being rich to a homeless person its just ridiculous and amazes me that people dont think of what they are actually saying to the bald girl cutting there hair i wish i lived closer to you i would love to have clients that new i know what they are going through. Plus as mine was falling out i got really good at hiding the bald spots until it just got too hard to hide it anymore. I wish i could help others.
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