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Comment by Jorja Porja on August 10, 2012 at 9:21pm

I would like to thank Melissa for her comments. As a parent of a seven year old girl who lost most of her hair at 5, I and my husband struggled to accept it and tried our best to be positive about it and not let our daughter see how cut up we were about it. Thanks Melissa for the reminder and the knowledge that a positive outlook provides the sufferer to accept and live with the condition. Carolyn and Karl (New Zealand)

Comment by MotherofM on July 30, 2012 at 4:02pm

i know what you are going through. My son was diagnosed with AA at 14 months of age and he lost 90% of his hair on head and most of his eyebrows. We decided to do the Ayurvedic (herbal) medicines from this well known ayurvedic doctor in India and now all his hair is back... just within 6 months.

His name is Dr. Pankaj Naram and he travels the world. We met him in Charlotte and in Atlanta and are still continuing the herbs for my now 23 months old son.
check out this website: http://www.jivanshakti.com
you can also see videos on youtube. I hope this helps!!

Comment by Jordan's Mom on July 30, 2012 at 10:12am

My son seems to take this better then I do. He can be self consouse at times, but is all ready laughing about it. His father went for a hair cut the other day .... I took him to the toy store in the same mall.... not because his AU...but becuase he didn't wnat to wait for dad!..as we walked by he said..."those ladies will never see me again eh Mom?" with a giggle. I said Nope probably not!... and we giggled together...
I don't know if he needs the support groups and stuff...maybe when he is older... but i might need them now

Comment by jenx on July 28, 2012 at 9:17pm

How is your son taking it?

Comment by Anne Brenda on July 28, 2012 at 9:48am

Even though it requires a major shift and adjustment when something extreme happens to us or our children, it's important to remember it doesn't have to be a tragedy. It is a challenge to be met, and takes time to come to terms with, but in the end, attitude and retaining self-respect account for quality of life. Alopecia is a social disorder, not a medically life-threatening one, and becoming comfortable with baldness will determine how others perceive and accept your child and the type of life he has.

Comment by Jonathon Cullen on July 28, 2012 at 12:00am

Sometimes kid are nicer than you think and sometimes they are horrible. I went through all of my schooling with AU and it was a learning experience. Some kids were curious and has lots of questions and then others were mean. One good thing is that the kids that were curious about it usually stood up to those making fun of me. Trust in your son and his judgement to make friends. His friends will help him fend off the bullies and help keep him strong.

Comment by Alayna's dad on July 27, 2012 at 11:41pm

Kids seem to be more resilient then we adults. My daughter has girl friends that accept (play) with her as if nothing was any different. Last week we where at the beach with a fully exposed bald head for the first time. I thank God she is not sick, and able to do all the things kids do!
She is 9. Yes, I do worry about the teen years. But she has friends and family that love her as is.

Comment by mkangas on July 27, 2012 at 7:26pm

I am not a parent but both my brother and I went through this at different points in our lives. I was older but my brother was around your son's age when his hair fell out. I know it was devastating for my mom not to be able to fix it for us, no matter how hard she tried. It was of course devastating for all of us, but we eventually realized that there is life beyond alopecia. If it means anything, we are both happy, married, gainfully employed adults, me with hair, he without. Alopecia has not impacted our ability to do the things we want to in our lives. It sounds like you are an amazing mom with an amazing son. Hope this helps!

Comment by FANCY1024 on July 27, 2012 at 7:03pm

Jordan's mom, My husband and I attended the NAAf convention in Washington DC last week. It was an incredible experience. And the support I got there was amazing! One of the convention speakers was a young woman who also got AU as a child. She explained how as a child she did a presentation for her classmates explaining what Aloepecia is and why she had no hair. She basically said that once the kids learned what had caused her hair loss, the kids started to treat her like a normal kid and things went a lot easier for her. I would suggest talking to your son’s teacher about doing a presentation like that and basically teach the school and community what AU is all about. Let the people of your community and school get to know your son as he is. People fear what they don’t know. They need to know there is nothing to fear and that he’s just a normal boy with no hair. I truly believe it will bring your family closer with your neighbors and community. I believe the next convention is in St Louis, Missouri. I would also suggest going to that convention. Let him be around other kids with Aloepecia and join the camp. He will have a great time and the support you both get will truly help! Hugs, Di

Comment by Melissa on July 27, 2012 at 6:50pm

Hi there. I feel for you and especially your son. Putting on a very positive exterior always helps. Sometimes my mother cried when I was younger, which made it seem like it was more of a terrible thing that it really is. Ultimately, it's all about self esteem so just focus on encouraging him towards things that strengthen that. :) Forgot what everyone else thinks. It ultimately only matters what you feel inside.

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