My parental struggle to accept my son's AU

My son has only been recently diagnosed with AU. It was quick too. in a few months he was completely hairless.
I know he is healthy and i thank god he is, but it breaks my heart knowing he is different, and he knows he's different. And after being upset about that i feel guilty that i should embrace his bald headed cuteness! I am not ashamed of him in any sense of the meaning i just fear for him, growing up in a smaller town, people are cruel and ignorant. I am mad at the world for dealing him this hand.
I hate that there is nothing I can do. Even a wig wouldn’t cut it... his hair feel out in a matter of months during the middle of the school year. The kids witnesses it happen It would obvious if he had a wig on, and in my option another reason to be teased, and harassed. He’s got no eye brows or eyelashes either and I think that’s what stress about the most.
Most times I am completely okay with it and it doesn’t bother me…. But when I think too much about it or start doing research I just get so stressed. Or worse when he starts feeling self-concerned I do for him. I always put on my happy mommy face and tell him and whoever will listen… that he is who he is …. Some people are blond some are brunettes…. And some are bald! Some people are black some are white some have freckles some don’t… we are who we are…and life would be boring if we all looked the same!
This is me just rambling on because I been looking at all the profiles and groups here. And as I take in more info…. I feel more stressed. But I am learning to deal I guess. He’s healthy and that’s all that matters!
I would love to hear from any parents In Ontario Canada, (north of Barrie would be awesome)

Views: 1059

Comment by Anne Brenda on July 28, 2012 at 9:48am

Even though it requires a major shift and adjustment when something extreme happens to us or our children, it's important to remember it doesn't have to be a tragedy. It is a challenge to be met, and takes time to come to terms with, but in the end, attitude and retaining self-respect account for quality of life. Alopecia is a social disorder, not a medically life-threatening one, and becoming comfortable with baldness will determine how others perceive and accept your child and the type of life he has.

Comment by jenx on July 28, 2012 at 9:17pm

How is your son taking it?

Comment by Jordan's Mom on July 30, 2012 at 10:12am

My son seems to take this better then I do. He can be self consouse at times, but is all ready laughing about it. His father went for a hair cut the other day .... I took him to the toy store in the same mall.... not because his AU...but becuase he didn't wnat to wait for dad!..as we walked by he said..."those ladies will never see me again eh Mom?" with a giggle. I said Nope probably not!... and we giggled together...
I don't know if he needs the support groups and stuff...maybe when he is older... but i might need them now

Comment by MotherofM on July 30, 2012 at 4:02pm

i know what you are going through. My son was diagnosed with AA at 14 months of age and he lost 90% of his hair on head and most of his eyebrows. We decided to do the Ayurvedic (herbal) medicines from this well known ayurvedic doctor in India and now all his hair is back... just within 6 months.

His name is Dr. Pankaj Naram and he travels the world. We met him in Charlotte and in Atlanta and are still continuing the herbs for my now 23 months old son.
check out this website: http://www.jivanshakti.com
you can also see videos on youtube. I hope this helps!!

Comment by Jorja Porja on August 10, 2012 at 9:21pm

I would like to thank Melissa for her comments. As a parent of a seven year old girl who lost most of her hair at 5, I and my husband struggled to accept it and tried our best to be positive about it and not let our daughter see how cut up we were about it. Thanks Melissa for the reminder and the knowledge that a positive outlook provides the sufferer to accept and live with the condition. Carolyn and Karl (New Zealand)

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