Alopecia World
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Off the Xelganz
I have been taking Xelganz for about a year just this month my insurance approved my coverage. It has worked great on hair regrowth all over my face and body (except for male pattern baldness). The issue I have had with this drug is the numerous upper respiratory infections and chronic coughs. I also have many dysplastic nevus on my back and upper abdomen which puts me at higher risk for skin cancers.
My dilemma is I have a two year old beautiful baby girl. I love the way this drug has grown my eyebrows and some lashes back but I fear the risk factor involved with depression of my immune system. Do I give into vanity and take this drug or do I put my long term health above the risk? As of now I have stopped the Xelganz. I have concluded that my daughter needs a father more than I need two two-inch strips of hair above my eyes. I fear losing my brows and will continue my steroid injections for now.
What are your opinions on this subject? Is the drug worth or not worth the risk? I greatly appreciate all of your thoughts.
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Comment by Debbi Fuller on September 13, 2017 at 8:33am
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oops, just reread, meant THEIR first commandment.
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Comment by Sunflower on September 13, 2017 at 8:51am
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Stop the drug! Have your eyebrows microbladed -- it's awesome. I have NO real eyebrows -- and had them microbladed -- they look real and natural -- no one ever said a word -- which is a GOOD thing!
Good luck!
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I also am losing hair and have lost my eyebrows. When 1st diagnosed Dermatologist put me on meds. The side effects so bad, wound up in the emergency room, that I'd rather lose hair than put my body at risk. After a visit to my regular doctor she suggested I check out permanent makeup / tattoo brows. After about a year I checked it out and went for it. It is so nice having brows again. No worry about if they have worn off while I'm out. Swimming is fun again. I highly recommend. Good luck.
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Comment by Rascalx2 on September 13, 2017 at 9:02am
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I have been in the exact spot you are in the past few days. I have been on xeljnz for year but had increased dose and past months have had full eyebrows, full beard, full sides temple area on head. Its all white turning dark looks salt and pepper, I have 5 yr old twins and think that it is more important to be around for them than have brows, but i m still on it right now and have got to stop taking it because Im constantly afraid of lymphphoma
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I am leery of all the medications prescribed so freely. I don't necessarily think adding all of the chemicals to the already stressed body makes any sense.
I'm considering going drug free for my condition and just living with the results.
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skin cancer? wow that did escalated quickly.
it's 2017 my friend. we have no idea what causes cancer. my brother in law died of cancer 2 years ago, he was 35, he never smoked didn't touch alcohol and was slim.
millions of people worldwide are taking biologics for multiple reasons. it's your choice. drug free for a healthy individual is obviously better but us alopecians... are we really healthy? our t-regs are confused. truth is that we don't know what is happening internally. studies demonstrates alopecians have more diseases than healthy individual.
am not pro drug. am pro happiness.
having eyebrows and lashes is nothing too much to ask for. complete hairless it's weird looking. u know it and I know it. it sucks. one could even think about having eyebrows just to make his kids feel more confident about him/her.
women have wig and make up, unfortunately we have no other options.
best of luck.
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Over 40 years with Alopecia. The mirror never changed. I was called a skinhead at maybe 7. At 46 I am just called white. Ya I am giving Xeljanz a true shot. No side effects. I fear Alopecia related autoimmune complications more than any Xeljanz side effects. Sad
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I learned a lot about this whole situation.
Not regarding the drug, but the human condition.
In WWII, people were herded in concentration camps, and used as medical experiments.
They knew, as well as the doctors who were performing experiments on them that the drugs they were made to orally were dangerous. Many fought and were shot during these experiments. Bayer Pharmaceuticals knew it too, and forced their drugs on them anyway. And made Bank.
Fast foward, to the decade 2000. One young guy grows a head of luxurious hair from taking a pill.
People see it in the news, and on the internet. Reporters are making bank from utilizing "click bait" "catch-phrases" and "sensationalism" on the internet. Doctors are pushing the drug knowing full well, everyone is not going to have the same results, and the drug is dangerous. But they're getting "kick-back", and the Pharmaceutical companies are making bank - and no one is fighting against it.
It's just the opposite of WWII. Folks are now running to the physicians, and swiping their credit cards left and right..
For the sake of saying: I have hair on my face, and scalp. Voluntary, high-paying, human, guinea-pigs.
Many folks were hiding the fact they were becoming sicker, to the point of cancer..
Folks here on the forum, damn near "yelling people down" to convince others to "try the drug - it changed my life!"
Anytime someone would state something with the "voice of reason" some members, if they could, would get in a fist fight to shut them down. I do remember one in particular.
Now, folks are finally coming to grips with the irrationality of their actions. Some never will.
I've seen the human condition in the last few years.
Crazed, zealot, angry white male and female Trump Supporters who are realizing that our new president isn't all that he hyped himself up to be.
And zealot Alopecia world members who are realizing the same thing about this drug.
It's not the zealots who were encouraging people to buy this drug - even though they were having side effects and wouldn't tell anyone - it's the ones that believed them, and risked it all.
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Your are the problem with America. Role back 44 years DPCP is showing results with Alopecia but can't pass FDA guidlinee. Kids are told the problem is stress with the only real treatment is steroidal.
Thousands of suffers suffer from snake oil salesmen. This is the best county in the world. If you don't like it find better. 46 years with Alopecia and I still choose not be be a victim. Suck it up buttercup, you lost the election. The problem isn't just people like you but the uniparty in Congress pretending they care. When everyone cries victim hood No one listens. Sad
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So, anyway, I feel so much better having the hair I have. I am AU and it feels good to not stand out as the freak in the crowd but to blend in with the crowd. I am continuing with xeljanz at this time but I do think about side effects constantly.
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