Thinking somehow when I got answers I would feel better. 1st group. 1st blog. Frustrated from writing an hour to comment on someone's blog only to LOSE everything I wrote. Tried to think of it as a purging not meant for others... But I feel so alone. Overwhelmed by all I've learned in last 72 hrs. But I am HERE. FEEL miserably physically but a hint of hope that I'll only be alone by choice now. And sometimes I need the solitude but find that to much time spent alone with my thoughts can be a dangerous place. A new chapter, new challenges and opportunities. Blessings to each of my "siblings" in this insane disease. Many prayers for peace to you and yours! 

Views: 160

Comment by Deb on February 21, 2017 at 11:31am

Comment by Deb on February 21, 2017 at 11:32am

Prayers go out to you!! 

Comment by Siella scott on February 28, 2017 at 5:07am
A new day. A new chance for facing challenges instead of hiding! Finally got the courage to cut my ragged hair. No crying, no pain, no sadness. Remembered an old saying: No pain in change, pain in RESISTANCE to change. Feeling empowered and free, at least from hair worries. Systemic Lupusand health much more important than hair at present. Mercy is coming. I feel at long last.Sometimes I'm just so resistant to acceptance that I make myself suffer unnecessarily. Not today satan. Not today!
Comment by Cheryl, Co-founder on March 8, 2017 at 12:08am

Hi Siella,  You are definitely not alone.  I remember when I came out of denial.  It was indeed a scary lonely place.  But it is the place to start living and healing. I found that the secret to really "living" with alopecia is finding your way to do everything that you did before alopecia again. Once I found my way to be feminine, go to the gym, swim, date and many other things that were important to me I found that my alopecia faded into the background.  

Let me know if you have any questions.  

Cheryl

Comment by Siella scott on March 8, 2017 at 7:19pm

Cheryl, Thank you for the warm welcome. This photo was taken after I cut off long crazy fuzzy strands that just kept coming out. Now its shorter but still irritating to my head. Thinning more daily I'm so tempted to shear it and be rid of the bristles left that just hurt. Physically. Is it my imagination or does it actually hurt, itch and poke my near empty scalp? Been so physically ill, not much energy for more than existing. At times I actually forget, briefly, that I only have a little hair on my head. Everything else, gone. Wish if its gotta go, just go and be done. Anyone? Is that normal? Again, I am NOT my hair. Perplexed in Alabama!

Comment by Tallgirl on March 13, 2017 at 12:39pm
I just keep multiple wigs and hats, so I can feel like I have choices that look good, depending on the event, outfit and my mood. There are eyebrow kits at Walmart, make-up tutorials online, and hair salons with private back-rooms for shaves or trims. Turkish scarves are long and Bohemian. Combine these with cool clothing,big earrings and sunglasses, and you'll have some fun on outings.
Comment by Siella scott on March 13, 2017 at 1:43pm
Thanks. Out today doing a bit of makeup shopping. Eyebrows actually look odd after so long without. I'll get used to it. Have a lot of scarves, hats, etc. Most were used when I had lots of hair. Some will work. Others not so much. Idc much right now. Very close to going uber short. Still working on the nerve. Maybe tiday. Maybe not. :-)
Comment by Cheryl, Co-founder on March 17, 2017 at 1:44am

If you think you may want to take the cut/shave route, there is a bit of discussion on the subject in the below group.  You may want to take a look at it.  

http://www.alopeciaworld.com/group/sisterhoodofwomenwhoshavedtheirh...

But take YOUR time and decide what you feel is best for you.

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