For those of you who do not know me,I have 2 beautiful boys,Mason who is my oldest at the age of 21 months,and Porter who is my youngest at 6 weeks.This blog is about my oldest,Mason.
I was told that alopecia was not hereditary , and I had hoped for boys it wasn't.I noticed a spot on the back of Mason's head about 5 months ago.It was smooth and round,about the size of a toonie.I was sure right away.I showed it to my fiance right away.He told me it was nothing,that it was just probably just from him sleeping funny,but still I was sure.It was all to familiar to me.I remember putting topical creams on spots identical to his when I was a child and lost hair like that.Within the last month he started getting more spots,about 5 that are just a little smaller than a dime,also on the back of his head,he has one the size of a nickle on the top of his head,and on one side of his head where his hairline should be there's nothing,it's just smooth.We went to see the doctor today and it was confirmed.
As a person who grew up with alopecia people were very mean to me about it.They thought because I looked different it was something to make fun of me for.As a adult with alopecia, I feel I'm well adjusted and confident as a bald woman.I don't think alopecia is a curse or something bad or even a defect as some might,I just think some people are bald and that's how it is,and yet as a mother finding out her son has alopecia I can't help but feel like I can't breathe.I can't help but feel purely responsible for the ridicule he is will encounter because of this.If this was a different world where acceptance and understanding was our way of life it would be different but now I worry about when he's older.I fear for the treatment he will most likely receive.For myself as an adult when I come across another adult who makes obscene and rude comments I just laugh it off at this point because they lack a certain amount of intelligence and maturity,maybe even some self esteem to have to point out something that effects them in no way.(This is my opinion and it is not meant to offend anyone) .
So,I was wondering if there is anyone else on Alopecia World who has Alopecia themselves and a child and how it makes you feel and what you did to help cope,and to other parents with children who have alopecia how you help your children cope and how you cope as parents?