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"Please Don't"
“Please Don’t”
Just for now,
Please don’t tell me that “its just hair” because it is much more than that.
Please don’t tell me that “hopefully it will grow back” because that doesn’t matter right now.
Please don’t tell me I look pretty without, because I do not believe you.
Please don’t tell me that “you thought you noticed something different about me”, because I'm already self-conscience enough.
Please don’t tell me you knew I was wearing hair that’s not my own, because that will break me into pieces.
Please don’t give me well intentioned advice on “how to handle this” because its different for everyone and I am just holding on.
Just be here and be my friend.
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Comment by Vigdis on January 26, 2012 at 4:04pm
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https://www.facebook.com/pages/linnharalopeciabloggno/256048347768318
Here is my daugthers blogg..It is in Norwegian,but there is a lot of pictuShe got alopecia when she was 7 years old,but it took her 20 years to deal with.She was on national tv talking about it,and even took her wig of there..
Thank you for sharing..
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Comment by Leslie Mader on January 26, 2012 at 9:48pm
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I love what you said! I feel exactly the same! No one, no one, knows what you feel unless they have had to deal with Alopecia!
I don't care how confident and strong we are - it's still heart breaking!
Love you for sharing your honest feelings!
Leslie
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Comment by Dana on January 26, 2012 at 10:42pm
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I hear you Samantha that sounds like my truth too I've thought all those things I appreciate your honesty simply said.
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Comment by samantha on January 26, 2012 at 11:39pm
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its such a mystery of emotions in the beginning. I thank God im not there now, but the reason I wrote this was bc the other day a dumb friend of mine said he had noticed "something different" before I has told him.I realized even though I have had no hair for 10 years and am very open about it i still am affected by peoples words. this wasnt a cry or a poor me just raw and real and this is exactly how i felt and many of us feel when we loose ALL our hair, lashes, brows etc... you think loosing head hair is hard, wait till your lashes and brows go.
Alopecia does not identify me Christ does.Psalms 139:14yes it
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Comment by mmmm on January 27, 2012 at 8:30am
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I really like your blog. That's exactly how I feel too!
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Comment by BTB (John) on January 27, 2012 at 2:37pm
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This blog is awesome it expresses exactly what my partner says all the time. The mistakes I mads in the early stages thinking I was being supportive went down the lines describe, and the times I have seen comments on here, as well meaning as they may be are very unfeeling. No one wants to hear they look beautiful bald when they are feeling so freakish, males you wonder how bad you looked with hair if you look better without it. This would have to be the best blog on how it feels to be bald if I had read this years ago I would have been a better husband and friend to my partner. Thanks Samantha.
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Comment by Kate on January 27, 2012 at 3:12pm
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I love this.
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Comment by Pat on January 27, 2012 at 6:00pm
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Exactly! Well written Samantha...
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Your blog is so well written. It is hard enough to cope with the alopecia and I agree sometimes you just dont want to hear that it is just hair especially from people that have full heads of hair.
Great Blog.
Take care,
Jill
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Comment by SarahW. on January 27, 2012 at 8:29pm
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Love the post Samantha. Those feelings I deal with everyday and I often wonder if they'll ever go away. All I guess I can do is "hold on".
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