Alopecia World
www.alopeciaworld.com
Relecting the last year..
Today I find myself feeling sad and weepy while my 6 year old daughter with Alopeica just loves life and enjoys doing all the fun things that kids do. Dare to tell her she needs to miss a day of school and tears start to roll down her cheek. Tell that I am not buying a webkinz today at the mall because she too many and her eyes begin to water. Tell her can't skate today because her skates are too tight a waterfall comes down her face. Tell we are out of paper so she can't draw and she gets sad. But, tell her she has Alopeica and she may lose her hair, she says "mommy it will be okay, I am fine." This is her life. We have been blessed that Samantha has been so accepting of her Alopeica and has been able to demonstrate understanding an cope with it. She has a supportive family and friends. A year ago I found myself searching endlessly for a successful treatment, not wanting to accept she may lose her hair and today her hair is growing. A year ago, I was searching for a wig. And a year ago today she put on her first wig and has been wearing one ever since. Samantha gets up every morning, puts on her wig and goes off to school to live, laugh and learn. But, today, I find myself sad that a 6 year old has no hair, eyelashes or eyebrows. I can't believe it is a year that she has lost her hair. I just never thought this would happen. Where did the time go? Today, I decided to update our photo album and organize her school photos, etc. And my heart just filled up with sadness and tears. I miss the girl I looked at each morning. My husband keeps telling her that she will have a nice short hair cut by her birthday if her hair keeps coming in, but what if we can't give her the gift her hair. Will she cry a river then? Probably not, but the strangest thing happened over the weekend. We were out shopping and she wore her headband like she always does on non-school days and she turned to me and said I want to go home. When I asked her why she said two people have stared at her this trip and she did not know why. I told her it was because she was beautiful. I did not notice any staring. As she approaches 7 girls start to take in the whole self-image thing and it scares me that this happy and self-confident little girl with change in a way that won't be healthy. I hope she will always remain that happy and well adjusted little girl I see smile each day. Thanks for reading...
-
Comment by Sharon on December 2, 2008 at 11:42am
-
Hi Cindy I just want to send you a huge hug. We have been on this journey together haven't we and I can't believe it is a year either. I know where you are coming from..........the times I have cried have been after looking at photo's too lol. Samantha will be fine hun, Nicole was 8 when we first noticed her hair she is now 12 and she is fine. She has also lost all her hair eyebrows and most eyelashes and she gets on fine, Nicole hasn't really had much trouble with kids, I'm sure she will have her moments but she will and has been ok...........I think it is our job as Mum's to worry but I try not too and just know that if an incident does arise then we will be here to help her cope with it which she does in true Nicole style lol. Our children are wonderfully amazingly strong, sensitive and caring young people who can and have coped with alot in their short life times. Say hi to Samantha for us Cindy and you take care I'm sure your having a better day today =)
Love and huggs Sharon
-
Comment by Supermom on December 2, 2008 at 4:20pm
-
Wow, I have had a bad year hairwise but if it happened to my kids, I can't imagine how I deal with it. My kids have been so accepting and supportive, kids are wonderful.
I hope her hair grows back soon. She is coping well now but it is very difficult for kids who are different when they get a bit older. My daughter who is 10 gets teased alot because she dresses like and plays with boys. Some kids are extremely mean and pick on her and call her a he/she. WHERE does that come from. She is beautiful with long curly hair, she is extremely artistic, she loves animals and is gentle and kind. She has a great sense of humour and she is a perfect daughter. She gets very sad and hurt sometimes but we put things in perspective and think about others who are worse off. Growing up is hard but the challenges make kids stronger and hopefully more epathetic to others.
It's harder for Moms, but we have to be strong and nuture their self esteem and love them. All the best,
-
Comment by Katie Beth on December 3, 2008 at 2:16pm
-
Have you seen my blog about sulfasalazine? Have you tried that for your daughter? My daughter is 7 and also suffers from AA but lost all of her hair last year. I felt exactly the same as you do. My heart hurt so bad for my daughter and I would cry myself to sleep night after night after night. Sulfasalazine has worked wonders for my daughter and she now has 95% regrowth. I'm convinced it's the medication and would be happy to tell you about our experience.
-
Comment by MARIA (mom of Savanna) on December 3, 2008 at 9:10pm
-
Oh Cindy, Sadness fills my heart while tears are soaking my shirt. I know how you are feeling at this moment, trying your best to do what you think is right, and then at the end of the day you still feel like nothing was accomplished. Samantha is so much like Savanna it is amazing they handle this so well. You have been strong when needed to be...and privately crying. Just hold her and tell her how beauriful she is constantly, and your love is endless no matter what. You have done great even though at times you dont feel like it. You and Sam are always in our thoughts...Maria
-
Comment by Trina on December 11, 2008 at 8:49am
-
Oh my gosh Cindy! It seems to bother you more than her!. I completely understand and as a parent you just want to protect her. They handle it well because they dont know anything is wrong. They just want to be kids and the sad part is people take that from them. Niyah was the same way happy and ready for school until a child noticed and she set them straight. I think Sam is much stronger than you give her credit for. She has to be she has you for a MOm and your doing a great job! Niyah is 9 and sam will be fine with her image as long as you dont make it the center of her life. Keep telling her she is beautiful and when people stare at her... heck stare back at them. She is going to need the strength from you if she has to endure this because she will be ready for anything as long as you are.
Comment
© 2024 Created by Alopecia World.
Powered by
You need to be a member of Alopecia World to add comments!
Join Alopecia World