Katie Beth
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Relationship Status:
Single
About Me:
My daugher has Alopecia
Do you have alopecia?
I do not have alopecia
Are you age 18 or older?
Yes

Katie Beth's Blog

Sulfasalazine works! My daughter received the "cured" stamp! Please read this!

Posted on April 7, 2009 at 9:03am 8 Comments

My daughter was diagnosed with AA when she was three and progressed to totalis about a year and a half ago. After many treatments that didn't work--everything from natural to rogaine to creams, DPCP, (the only thing we did not do was steroids or shots, she was too young) we found out about the drug sulfasalazine and it's positive effects on alopecia patients. We started her on this treatment a year ago and she now has a full head of hair! She also has all of her eyelashes and almost all of her… Continue

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At 12:26pm on June 6, 2009, Amit said…
Hi Katie I am a father of a 2 year and 6 month old daughter. Who is suffering from Alopecia Areata It all began with a small spot and now my daughter has lost almost 85% of her hair we are very much worried and considering cortisone shots in the scalp, but she being so young we will have to give some oral sedation. The Dr says it may take 25 shots since the area is too large. The other alternative is Homeopathic treatment which we will start soon. I would also like to know more about sulfasalazine is there any way you can throw some more light on this product and its side effects.
Thanks
Andy
At 8:02am on April 8, 2009, SportyAusGirl said…
Hi Katie, i'd love to hear more about the Sulfa stuff your daughter is taking. Could you pnlease give me more details? how to take it, how expensive it is, is it a thing that when you stop taking it , hair falls out again?
Gosh, i'd love my hair to be back. Please let me know, i'd really appreciate it.
Congrats on your success.
Nadia
At 8:44pm on February 15, 2009, MARIA (mom of Savanna) said…
Sorry Katie havent been on in awhile...i will post my email in your in box and I will try to call again tomorrow..Maria
At 9:25pm on February 3, 2009, MARIA (mom of Savanna) said…
Thanks Katie for commented back...I will try to call again tomorrow....Do you have any pics to post of your daughters regrowth?? Area code (276)..Maria
At 5:24pm on January 10, 2009, MARIA (mom of Savanna) said…
Hello Katie, I tried to call the number listed on my last comment you left me. The lady who answered said it was the wrong number...Do you have a possible new number...I would love to talk to you and hear more about this treatment before I have to take Savanna to the derm in Feb...Maria
At 10:15pm on January 2, 2009, Cindy said…
Katie, do you have any pics to post of your daughter with her regrowth? I have to say this treatment has peeked my interest, but I am not looking to change what is working for Sam right now. This time last year she got her first wig and was nearly bald. Today, she has hair coming in patches. How long did your daughter take this drug before regrowth started and how long is her hair now. Did she grow lashes and brows back too? I am curious what the long term affects this med has on alopeica and the chances of losing again once stopped.
At 8:02am on December 9, 2008, MARIA (mom of Savanna) said…
Hello Katie, My name is Maria and I have a 6yr old lil girl name Savanna, she has been suffering with AU for almost 4yrs now. We have not tried any treatment because I am so worried about the end result, I am afraid of trying steroid drugs, unable to know what that would do to her in the future, she is very sensitive to everything, mainly that is why i havent tried in topical treatment. I dont want to do anything to her that would cause her pain now or in the future. I did read your blog on the Sulfasalazine, then read each and every article you posted, and did my own google search. I am sure you researced this completely before giving to your daughter, but how long does she have to take this drug, once her hair grows back can she quit or when she quits will it stay or fall out again, nothing i read answered them questions. I hate to give her something that isnt going to have a long lasting result. Has your daughter had any side effects? If I decied to try this on my daughter, who should I contact her doctor or derm? Even though everything seem pretty reliable I am scared to death to try something on her. I hope you can answer some of my question...Thank you so much for at least addressing the Sulfasalazine treatment. Maria
At 12:13pm on December 8, 2008, Cindy said…
I got your email..Thanks..We are doing a treatment similar to DCP and it is working for my daughter. But, I was interested to hear about the sulerazine. I was curious if alot of people are using it and the results..How long has your daughter been using it. You said she has 95% growth which is awesome!
At 8:32pm on December 3, 2008, Cindy said…
Hi Katie, thank you for your post on my blog. My daughter will be 7 in Feb. I am wondering if your daughter is doing the same treatment as Samantha. We are doing squaric acid. We had to sensitize her arm and then once we established a reaction in the form of a rash we moved to the scalp. We had no issue in that dept. We started it in Jan and her hair started growing over the summer. She has a layer of hair over about 60% of her scalp. Most of the growth happening in the last 3 months. I would love to hear you experience with your treatment. Cindy
At 10:28pm on December 2, 2008, Cherylnz said…
Hi Katie
Welcome to Alopecia World
 
 
 

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