Alopecia World
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Sulfasalazine worked for my daughter! Please read this!
My daughter was diagnosed with AA when she was three and progressed to totalis about a year and a half ago. After many treatments that didn't work--everything from natural to rogaine to creams, DPCP, (the only thing we did not do was steroids or shots, she was too young) we found out about the drug sulfasalazine and it's positive effects on alopecia patients. We started her on this treatment a year ago and she now has a full head of hair! She also has all of her eyelashes and almost all of her eyebrows. We are going to get her second haircut today! In fact, we went to the beach yesterday and she was able to get a hair wrap for the first time as a little girl. It moved me to tears. I feel it is my mission to get the word out about this drug. While it does not help EVERYONE with alopecia, it is a very safe drug (even for children) and has been around for 50 years so it's long term effects have been studied. I felt like since it was safe and some people had positive results, it was worth a try. It gave us hope and now has truly changed my daughter's life--and ours, I must say. My daughter has her blood taken every 6 weeks to make sure her body is tolerating the medicine and so far so good. I would love to tell you more about our experience and will be happy to talk to you if you would like to call me. My cell phone is 404-660-3414.
Replies to This Discussion
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Permalink Reply by Bud on
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Katie-Beth -
I too would like to know if your daughter took pills or cream. I am going to ask my doctor about this asap.
thank you
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Thank you for posting this. Please let us know how things go. I am going to ask my Dr. about it the next time I go.
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Permalink Reply by Kayla DeMarini on
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thank you for posting this!!! im going to ask my doctor ASAP
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Is this the stuff that causes a rash to appear?
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No rash has every appeared on anyone I know that's tried it.
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It's a pill that you take. From what I heard it is well tolerated and side effects are rare but if you are allergic to sulfa or eggs, you'll have to talk to your doctor about it.
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Permalink Reply by mary on
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Ive been taking Sulfasalazine 500mg 3x a day for about a year and a half in combination with prednisone. These are both pill form. I lost about 98% of my hair and Ive have total regrowth. I'm still losing eyebrows, eyelashes, and some hair on my arms. The prednisone made me gain about 70lbs, but I'm being weaned off the prednisone now. I get so tired of taking pills so several months ago I stopped taking the Sulfasalazine. Theres not really any way of knowing what helped my hair grow back, but would love to hear about other peoples stories.
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