So, I was searching the web today and I couldnt find any new developments in alopecia research. Maybe i just suck really bad at searching the web but it upset me. there are no new findings and it makes me feel like nobody cares about it. if people do get grants to research on it shouldnt there be updates or something online. i would think it would be news worthy.

so this is half venting and the other half is a question...

has anyone heard anything new lately?

Thank you!

Views: 6

Comment by Tallgirl on August 11, 2009 at 9:16pm
Try www.naaf.org, National Alopecia Areata Foundation. They have the research news.
Comment by Camille Reinecker on August 12, 2009 at 12:33am
Thank you! But I checked and they have the same info as they did at least 5 yrs ago. :o(
Comment by Lee on August 12, 2009 at 1:35am
I agree Camille...doesnt look like we are a top priority right now ; /
Comment by Kathleen on August 12, 2009 at 8:01am
The ONLY thing that I have come across in the last 5 years was a study haivng to do with Plaquenil. This was clinical trial that supposedly has been completed, however I cannot find any of the findings. Anyone know anything about that one?
Comment by Lisa on August 13, 2009 at 12:47am
We came across this article, it was very interesting...
http://bloodjournal.hematologylibrary.org/cgi/content/full/105/1/426
It is from 2005, you would think something more would come of it but I have not heard of anything.
Comment by Camille Reinecker on August 13, 2009 at 1:53pm
Thank you all for having a look!!! I will check it out what you hve found. ;o)
Comment by Mary on September 5, 2009 at 6:47pm
Hi Camille,

I need to send you a message, but the AW link isn't working so I hope you get this. I have a request from a Dutch magazine to use the photo of you and your mom and me from the NBO Day. It will be in connection with an article about alopecia. Would this be okay with you?...send me a message or post back here if that doesn't work. Thanks! Mary
Comment by Mary on October 8, 2009 at 7:22pm
Hello,Thea. You're obviously home and online, so please answer the email that I sent you yesterday.
Mary

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