Rogaine, clobetasol, plaquenil or steroid injections?

Okay so after reading a vast amount of your blogs I have come to a conclusion. It seems there is no simple answer as to what works best for people suffering with FFA. I started using Rogaine back in February 2013. This was before my doctor started treating me for FFA. Once I had seen my doctor she put me on Clobetasol cream. I know Rogaine take about 5 to 6 months too see any results. I just noticed a few days ago that I started getting very small hairs growing mostly on the sides of my head.

So here is my question. Do I continue with the Clobetasol cream once a day or do I go back to Rogaine. It has been a month since I stopped using it. I have read on some of your blogs that mens Rogaine works better. I know when I see my dermatologist in October she wanted to start injections. The Plaquenil meds scare me the most. Side effects seem scary. What has worked best for anyone out there?

Also I have heard many people talking about itching and burning. Is this from the medication or FFA? I used to have an itchy scalp which my doctor had given me shampoo's to use. Now that I have FFA the itching has stopped. I believe this is all part of the condition. It seems you get the itching and scaling first than FFA. Oh well. Does anyone have any advice?

Still Hopefull.

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Comment by Starr on September 12, 2013 at 2:52am
I am 65 and was diagnosed with Alopecia Areata in August after 3 months of developing itching, scaling, burning lesions that left 6 bald spots on the top and back of my scalp. I was treated for lupus flare up, ring worm, and dermatitis seborrhea, and finally a dermatologist did a scalp biopsy which came back positive for AA. He injected the sites with prednisone on August 16, and will do another set of injections October 3. They are not worse and no longer itching, but I do not see any hair growing in the bald spots. I now have FFA and newly developing bald spots with intense itching and burning. Some places feel as though there is a piece of "glass" in my scalp! I have been very discouraged and this has followed a very traumatic year after a brain injury, a divorce, my Father's death, and the loss of my home, not to mention the other autoimmune diseases like Sjogren's and hypothyroidism that have flared up. Reading everyone's posts has helped me understand this disease a little more each time.
Comment by Angell on September 12, 2013 at 2:48am

At first i just had AA and steriod shots helped a lot. Then it all fell out 2 years later, including lashes and brows. I did mostly everything after it all fell out. Almost 12 years later, still bald and no lashes or brows. I tried the injections again and even light treatment. A little regrowth, but not for long. Planning on having my brows and liner permanently done again. It is painful and a bit expensive, but it lasts quite a while and felt nicer looking in the mirror and not seeing melting make-up. Haven't worn a wig for over 3 years. Hats and scarves now.....or bald. Good luck and God bless us all.

Comment by Heather Lorelle Mattisson on September 12, 2013 at 2:05am
Hi Little Rhody - my rheumatoligist pit me on Plaque nil and my hair started growing all over my head in 2 months. What side effects have you heard about to Plaquenil? I took the shots also initially, and had successful hair growth, but as soon as the shots stopped all of my hair fell out. My hair now grows all over my head save for a single patch the size of 2 quarters, I believe due to Plaque nil. But now I shave it all off anyway because I learned to love myself as a bald woman. ;)
Comment by LittleRhody on September 5, 2013 at 7:37pm

Wow I had no idea that Rogaine caused birth defects. I am not planning on having anymore children. That is still scary. Thanks Alina for the advice. It makes trying the injections seem more positive. I really want to promote. Latisse for eyebrows. I am have wonderful success with this so far. After three months I'm hoping to post some photos with the before and after.

Signed Still Hopefull

Comment by Alina on September 5, 2013 at 6:32pm
Honestly, for me I did a little of everything. I have used Rogaine (with little or no effect) clobetasol, DNCB treatment and steroid injections. Obviously the injections are the worst, but I think the most effective. I lost about 40% of my hair, and almost all of it has grown back. So, if you can, try all of it. Cause if something doesn't work, something else might.
Comment by Tallgirl on September 4, 2013 at 8:46pm

Rogaine may cause birth defects. Are you of reproductive age?

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