Comment by cindy Babs on September 3, 2011 at 11:46pm

hi devon. i have a daughter that is starting her senior year in hs in 2 days. she developed alopecia 2 yrs ago. alopecia is very unpredictable as you will read over and over again on this site. sometimes the steroid shots and topicals help. i think it's a good sign that you are growing "tufts" of hair. one just never knows what course this condition will take. i know this is extremely hard for you but try to take comfort in knowing that you are by no means alone. you will find a lot of support on here. try to be positive in thinking that no matter what happens you will get through this difficult time. i wish i could tell you not to worry but i am sure that's not possible. it's important to be to be brave and strong. it will be a struggle that you will be challenged by and come out stronger. i have seen it happen in my daughter. hang in there. i wish all the best for you..... :)

Comment by Bald and Fabulous AKA Terri on September 4, 2011 at 10:15pm

I can tell you from my experience of doing the scalp injections that you most likely have hair growth in the areas being injected. But unfortunately this does not stop from other areas from falling out. Like Cindy mentioned, alopecia is very unpredictable. I hope you continue to have wonderful regrowth but please stay strong if it doesnt happen. When I was first diagnosed with alopecia (8yrs old) I did get full regrowth after it all fell out, for a number of years.
Remember we are always here for you ....Take care

Comment by Devon on September 4, 2011 at 10:39pm

Hello Cindy and Terri!!

Thank you so much for your sweet words. My parents are 100% supportive but I feel alone about it sometimes. Are there any foods/products that are known to help alopecia? What about scalp masages?

I don't mean to be whiney but it's very nice to vent to someone. I really wanted a boyfriend in my senior year of highschool. I like this one boy and I'm just starting to get to know him and I'm afraid if he seems a bald spot or thinning hair he will think I'm ugly or not like me. It goes the same with other boys... I'm afraid they won't like me. I really don't want to sound vain at all these are the things going on in my mind right now :/ Anyway! I really truly appreciate both of your input. Its nice to talk to someone who understands what I'm going through

Comment by Devon on September 4, 2011 at 10:42pm

p.s. Someone else wrote something after Cindy and before Terri. I was trying to the comment on my phone but I accidentally deleted it!! I'm so very sorry. I wish I could see what you wrote. Either way, thank you for commenting :)

Comment by Tallgirl on September 5, 2011 at 1:48am

I solved the whole formal dance problem in high school by asking older guys from church camp, who lived out of town. They would never have said anything even if they knew, my parents would have talked to their parents if they were rude, and I still had to work with them on committees all year, so they HAD to be respectful! I took a shy art student from my class to girl-ask-guy date night (also polite), and the rest of the time I had fun in groups: church, camp, trips, seminars, committees, Honor's Classes, drama club and allllll those cast parties! I wore a half-wig to school and events, then a full wig. I was able to hide my AA well!

Comment by Devon on September 5, 2011 at 9:44pm

Hello Tallgirl!!

Thank you for telling me that :) It's good to know that wigs can hide AA and look natural. Just what I'm looking for :) I REALLY don't want to let this stopping me from enjoying my last year in school. Do you have any suggestions for websites with natural looking half wigs &/or hair extensions?
Thank you!! :)

Comment by cindy Babs on September 6, 2011 at 8:41am

Hey Devon. Hope u had a good first day back to school. Try Googling "hair replacement "in your town or vicinity. Extensions and pieces are better ordered by an expert especially if u r a novice. B prepare. Pricey. Get a consult or 2. Think about it.Ask a lot of questions.sometimes it takes 6-8 wks to get a piece.

Comment by cindy Babs on September 6, 2011 at 9:10am

P.s. u could never b Whiney on here.we r here to listen and support. :)

Comment by Natalie on September 6, 2011 at 11:10am

Hello! I'm so sorry that you are having to deal with the scalp injections! I had cortisone injections in my scalp for about 2 years (once every 6 weeks). Sometimes the injections helped, sometimes they didn't. None of the topical ointments ever worked for me. My dermatologist eventually recommended that I take prendisone pills in an attempt to help my hair grow back. Unfortunately, the prendisone made me bloated, and once I went off of the pills, my hair fell out worse than before. I definitely DO NOT recommend taking any prendisone medication! I do, however, highly recommend natural treatments (such as Reiki, which is energy healing, or yoga/meditation, or running). These treatments helped me be able to emotionally deal with my hair loss, and I became a more positive, strong individual through these things. I think that the most important thing is to find a treatment or an activity that helps build up your self-confidence and ability to deal with stress. I don't know if you can wear hats or scarves at your high school, but when I was experiencing a lot of hair loss, I often wore hats or scarves over my head. There are some great ones at www.headcovers.com. Regarding hair extensions, I also inquired about them during my hair loss, and I was recommended against them because the hair extensions have to be weaved/glued in to your natural hair, which actually will cause more drama to your already-sensitive scalp, and could cause more hair loss. In the event that you lose all or most of your hair, I HIGHLY recommend Freedom wigs (a vaccuum wig). It has turned my life around and allowed me to be the most confident person that I have ever been before! Most importantly, please remember that you are not alone! The hardest part for me during my hair loss was thinking that I was alone (I didn't discover this website until after I lost all of my hair). You have a whole community who supports and understands you, and we are here for you :) Please feel free to ask me any other questions - I know how difficult the alopecia journey can be!

Comment by Devon on September 6, 2011 at 10:44pm

Cindy, thanks for the info!! I will most certainly do that! Thank you for all of the support :)

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