Hello!

Here is my alopecia story...

My hair started falling out in April... at first I thought it was from stress ( my dad had a stroke) but, we now found out it is alopecia. It is now September and my hair is still falling out. I got my first steriod injections 2 1/2 weeks ago and I am rubbing a liguid perscription on my spots at least twice a day. I am in my senior year of high school and this is really upsetting me. How long until I can expect some progress? In some spots I'm getting tuffs of hair back yet in other spots they seems to be getting worse :( I'm hoping & praying for some new hair soon.
Hope you all enjoy your holiday! Thank you for your help!

Devon

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Comment by Tallgirl on September 7, 2011 at 12:04am
Just do an internet search for the words "half wig."
Comment by Tallgirl on September 6, 2011 at 11:55pm
Go make an appeal to the School Board. Get on the agenda ahead of time. Have an alopecia support group member and dermatologist with you to attest to the bullying, psycholoical/emotional aspects, no-cure and unpredictability of the condition, and the social/concentration needs of a teen female student. Get them to make an exception to the hat and scarf policy, and give you a note to carry with you if challenged by teachers, hall monitors, administrators, or students.
Comment by Devon on September 6, 2011 at 10:51pm
Natalie! Thank you so so much for all of the information! I'm hoping and praying my alopecia won't get any worse than the spots I have now. I can cover most of it up really well so that makes me happy. I looked into clip on extensions and they may be a possibility... that way I can add length/volume when I feel its necessary. My school doesn't allow hats or scarves but I will find a way to conceal it :) I just feel self concious. Even though I can hide it I feel that every time someone looks at me they're noticing my hair. Although they probably don't even notice, my mind plays tricks on me. So I'm constantly worrying! My dad had a stroke and I think the emotions/stress of all of that added to my hair loss and made it worse. I also have been diagnosed with Telogen effluvium (hair loss due to stress) so I'm hoping that once I calm down and life returns to normal, so will my hair. I appreciate your support SO much! Thank you:)
Comment by Devon on September 6, 2011 at 10:44pm
Cindy, thanks for the info!! I will most certainly do that! Thank you for all of the support :)
Comment by Natalie on September 6, 2011 at 11:10am
Hello! I'm so sorry that you are having to deal with the scalp injections! I had cortisone injections in my scalp for about 2 years (once every 6 weeks). Sometimes the injections helped, sometimes they didn't. None of the topical ointments ever worked for me. My dermatologist eventually recommended that I take prendisone pills in an attempt to help my hair grow back. Unfortunately, the prendisone made me bloated, and once I went off of the pills, my hair fell out worse than before. I definitely DO NOT recommend taking any prendisone medication! I do, however, highly recommend natural treatments (such as Reiki, which is energy healing, or yoga/meditation, or running). These treatments helped me be able to emotionally deal with my hair loss, and I became a more positive, strong individual through these things. I think that the most important thing is to find a treatment or an activity that helps build up your self-confidence and ability to deal with stress. I don't know if you can wear hats or scarves at your high school, but when I was experiencing a lot of hair loss, I often wore hats or scarves over my head. There are some great ones at www.headcovers.com. Regarding hair extensions, I also inquired about them during my hair loss, and I was recommended against them because the hair extensions have to be weaved/glued in to your natural hair, which actually will cause more drama to your already-sensitive scalp, and could cause more hair loss. In the event that you lose all or most of your hair, I HIGHLY recommend Freedom wigs (a vaccuum wig). It has turned my life around and allowed me to be the most confident person that I have ever been before! Most importantly, please remember that you are not alone! The hardest part for me during my hair loss was thinking that I was alone (I didn't discover this website until after I lost all of my hair). You have a whole community who supports and understands you, and we are here for you :) Please feel free to ask me any other questions - I know how difficult the alopecia journey can be!
Comment by cindy Babs on September 6, 2011 at 9:10am
P.s. u could never b Whiney on here.we r here to listen and support. :)
Comment by cindy Babs on September 6, 2011 at 8:41am
Hey Devon. Hope u had a good first day back to school. Try Googling "hair replacement "in your town or vicinity. Extensions and pieces are better ordered by an expert especially if u r a novice. B prepare. Pricey. Get a consult or 2. Think about it.Ask a lot of questions.sometimes it takes 6-8 wks to get a piece.
Comment by Devon on September 5, 2011 at 9:44pm
Hello Tallgirl!!

Thank you for telling me that :) It's good to know that wigs can hide AA and look natural. Just what I'm looking for :) I REALLY don't want to let this stopping me from enjoying my last year in school. Do you have any suggestions for websites with natural looking half wigs &/or hair extensions?
Thank you!! :)
Comment by Tallgirl on September 5, 2011 at 1:48am
I solved the whole formal dance problem in high school by asking older guys from church camp, who lived out of town. They would never have said anything even if they knew, my parents would have talked to their parents if they were rude, and I still had to work with them on committees all year, so they HAD to be respectful! I took a shy art student from my class to girl-ask-guy date night (also polite), and the rest of the time I had fun in groups: church, camp, trips, seminars, committees, Honor's Classes, drama club and allllll those cast parties! I wore a half-wig to school and events, then a full wig. I was able to hide my AA well!
Comment by Devon on September 4, 2011 at 10:42pm
p.s. Someone else wrote something after Cindy and before Terri. I was trying to the comment on my phone but I accidentally deleted it!! I'm so very sorry. I wish I could see what you wrote. Either way, thank you for commenting :)

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