Sick of it!

I am so sick and tired of being depressed. I have had Alopecia Universalis of 11 years now and I am still morning the loss of the old person I used to be. I was finally coming to terms about being bald and my neice had an alopecia scare. She woke up with a huge bald spot on the top of her head. My brother and sister in law were mortified. Everyone was so worried. They took her to Texas childrens hospital to see the dermatologist and they said it was a scalp infection. I was so happy to hear that my neice would not be going through what I have been threw, but at the same time it re openend so many doors I had closed. Now, not only do think about my hair alot, alot again, I am now terrified that my children will have it. I could not imagine my little girl or boy going though everything I have been threw with this disease. I just want to have a normal fricken train of thought. I want to wake up and the morning and feel amazing. I have no idea how to get there.

Views: 175

Comment by Tallgirl on October 1, 2011 at 1:47pm
IFFFFFF your kids or friends or relatives got/have it, they would have one thing you apparently didn't: an expert mentor who shares this and COULD be a positive support...if she (you) would only realize that and show strength to others. As the older generation, sometimes we have to "suddenly cope" for the sake of younger ones. If they see despair and hang-wringing, they will panic. If they see strength, they will learn how to survive. Why not research stories of humans who face issues with personal strengths and attitudes?
Comment by Brianne on October 1, 2011 at 6:41pm
Thank you guys. It is so nice to be able to blog and just get this off my chest and get support. I think I should definetly go research some personal strength storries. I never let my little ones see me sad about my hair. It truely is so wonderful to have a place like this to come and express how I feel.
Comment by Tallgirl on October 1, 2011 at 9:23pm
I meant "hand-wringing." Typo!
Comment by michael on October 2, 2011 at 7:45pm
I know it is not allways what you want to hear but baby I wish you could see your self threw my eyes and see how beutiful you are. you wouldnt want to be any other way... And don't be worrying about our children if they get it they get it they have one then you didn't have that is YOU... And if they do.. I shave my head And we will be the sexiest bald family out here .... Lol... Love you babe allways be you
Comment by Dominique Cleopatra on October 3, 2011 at 6:45pm
Awesome post Michael!
Comment by Sarah Eisenhardt on October 4, 2011 at 7:10pm
Michael you rock what an honest display of love and affection! Stay strong Brianne, I will pray you find the strength you need.
Comment by Marilyn on October 5, 2011 at 3:22pm
HI Brianne, Went thru something similar, My niece had a couple bald spots but it was from her hair extensions. She even sleeps in them sometimes. Drives me nuts. Anyways she's better now but i felt same way, even a little guilty thinking she got it cause of me. We have our good days and bad and we just always have to ask for the strength so we can receive it. And believe me i have to beg for it sometimes and Ive been AU for 13 yrs. Look s like u have a good guy standing by u as do I, and my little ones arent that little anymore but I always see them as my reason to be stronger.
Comment by Amy on October 5, 2011 at 6:30pm
I agree, Michael you ROCK!
Comment by Cheryl, Co-founder on October 5, 2011 at 8:20pm
Brianne, sounds like you just gave yourself motivation to focus on what really matters in your life. If you have children whether they have alopecia or not, you will have the skills to show them grace, strength, perseverance, fearless to live your life and the ability to overcome struggles. Not to mention the ability to see beauty in all its different splendors and forms. Whenever things get tough they will have a mother that they can look at as an example. Be what you want your children to see. ;)
Comment by Brianne on October 6, 2011 at 7:37am
Thanks Cheryl!

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