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So where do I go from here? How do I feel better about this?
Well, I have been dealing with my hair issues for over 10 years and every time I think that I am coming to terms with it, I just go right back down. I was about to give up and go get a wig and broke down with my doctor this week. She said she isn't going to give up on me. I went from a diagnosis of LPP(lichen planopilaris) to now AGA(androgenic alopecia). I was told that there was a patient that had the same symptoms as me that had regrowth on aldactone. I tried it when I was first having issues and nothing happened. So I guess I am going to give her one more chance and then I think I am done. If I am not going to be able to grow any hair back and I am going to continue losing, then why put myself through all of this?
How do you come to terms with something that people stare at? That people point out to you - like I didn't know!!! That is the worst! I try and hide it as much as I can, but as it gets worse there is only so much that I can do! I guess it affects me more and more because of being single and feeling alone and feeling that no one is interested in me because of my hair. Sometimes it is just too much!
I am glad that I finally found somewhere where people know what I am going through and understand. My family and friends are supportive, but no one really knows what this feels like unless you go through it yourself. It sucks!
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Comment by George Ortiz on February 26, 2010 at 9:34pm
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Hi Julie,, I know of what you speak i currently have alopecia totalis, My hair fell out all at ounce within a month or so i was completly bald no eye brows to eyelashes no hair what so ever i considered my self to be be tough but i must admit i brokedown and whaled out loud thrashing things total meltdown still hard to cope with 4.5 years latter, I hold fast to the truth that God has a plan for us all, that God has my back and yours too.
God bless,live strong
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Comment by Stephanie on February 27, 2010 at 7:37am
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Hi Julie. You've definitely come to the right place. What I understand is that the eye focuses on ANYTHING different about a person, and that could be a mole, a piece of parsley on your tooth, striking colored eyes, etc. I had an accident years ago and there was a scrape on my forehead and EVERYONE glanced or stared at it even while driving my car. I remember wondering what it would be like for someone who had a permanent mark (oddity, disfigurement). Even the first time you hear an unusual name you react to it. It's more an impulse than an attempt to be cruel. The people who know you and care about you will no longer "see" it. My family and friends don't even talk about it with me anymore besides an occasional "How are you doing?" I wear a wig and they have come to think of it as my hair.
I don't know much about your condition but since we both have hair loss I can certainly relate to what you are going through. Figure out what you need to do to be happy with your outward appearance but more importantly try to focus on everything that is good in your life. There's so much more to you than your hair!
:) Stephanie
PS: The first thing I noticed when looking at your picture was you glasses. Perfect shape and color for your face.
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Comment by Hopehopper on June 4, 2015 at 9:11pm
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Hi Julie,
I know your post about the aldactone is a few years old now, but did you ever find a regimen of treatment that helped? I hope things are better for you now as time has passed.
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