Isn't it remarkable that in 2010 we can put out our alopecian thoughts and fears (be they medical, personal or social) online...and that someone, somewhere, whom we have never met, from anywhere in the world, may be reading and answering at any time of the day or night? That someone, somewhere, may be putting out a little thought of hope or prayer for our situations, or have the very answer we need? Imagine how amazing it is for those of us who went through MANY years of no computer at all (before 1986?), or who never met another person with alopecia!

Keep connecting, everyone! This place is more special than you know, because we can say IT, reveal IT, discuss IT and STILL be accepted and understood!

Views: 37

Comment by Bald and Fabulous AKA Terri on August 16, 2010 at 10:40am
Hi Tony
I have had alopecia since I was about 8 yrs old. Not knowing what was happening and always being a very shy kid in the first place i remember being devastated. My mom and doctors just kept saying it was stress. And in order to help my mom got me my first and only wig. And in my memories it just seemed to speed up the hair loss because for i knew it I was completely bald. Going to school was awful. Everyone knew, ( how could they not noticed.....thin balding hair to full hair) plus my little brother told the whole school. I remember all the kids trying to pull it off or yelling such things as "wiggy" or "I can see the tags". Not helpful for a shy girl. One time in the middle of the hall full of kids, one kid got close enough to actually flip the wig off. On to the floor where I had to pick it up while all the kids laughed. Thankfully summer wasnt far off and during that time slowly my hair grew back and coincidentally we moved. Im 35 now and have had many bald spots since, and recently (the last few years) I have lost alot of hair. Prolly alot had to due with the many changes and stresses that has happened. (death of a close friend/rental property changed ownership 3 times) LOL. I have been doing injections now for about 8/9 years. My doctor is wonderful. Many times I have asked him if I should continue the injections, his response each time has been a pat on the hand and "its up to you, if you want to continue I will continue" Never once have I made to feel that I should keep coming back to the doctors office. Not by him or the nurses. I find some comfort in that.
Since finding this site this past week I have felt alot more comfort and I think it allowed me to feel brave enough at work just yesterday to actually take off my bandanna and show my close friends there. Which was a first. Even tho I have mentioned alopecia many times. People at work were always curious why I wore a bandanna.
As a side note I have put on a wig and went out in public in the recent year but still feel anxious but figure I will try to push thru that.
Comment by Carolyn Ferrie on August 20, 2010 at 10:09pm
I have said it lots of times before and I'll say it again, if it wasn't for all the good people on this site, I would never have gotten through this year without you all.A big Thank you to all of you and I thank God for the internet every day!!! Take care everyone and keep up the good work on this site.
Comment by kerry edwards on August 28, 2010 at 7:42pm
yes it is good we can now wirte our messages whenever.I like there is a support network and people can encourange each other, and there is weblinks , praise god for IT xx
Comment by Tallgirl on February 16, 2012 at 12:41pm

High Fives to all who use the computer for positives and kindness!

Comment by kerry edwards on February 17, 2012 at 7:28am

Yeah iam very i found this site it has been a great help to me I dont use it has much it good when i receive e-mails letting me know whats happening. And reading about people like my self thank you and god bless xxx

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