Comment by Leslie Mader on November 18, 2011 at 8:35pm

Is it hard to style only because it's not your own hair? Do you shower in yours?

Comment by Leslie Mader on November 18, 2011 at 8:43pm

Ok, that's why i am getting the "gripper" it's human hair but not custom so that way i have another to wear whenever my vacuum needs repair. You can look at the grippers at Follea website, that's the company who makes them. My gripper will run me about $2,000 for 6". I am getting thru the gal that will be styling and cutting my vacuum when i get it. She said that her clients that wear the vacuum and grippers say they will never go back to a synthetic wig. Doesn't surprise me!
It will be nice to be able to run my fingers thru my hair (vacuum) and not have my wig move on me.

Comment by Susan Innes on November 18, 2011 at 8:57pm

NAAF's Ascot Fund used to have money available for hairpiece purchase assistance; I'm not sure how the fund is currently doing but it's worth an inquiry. The name of Freedom Wigs is remarkably appropriate as the hair stays in place without getting itchy, no worry of shifting or needing to scratch:). The new vacuum wigs breathe; the earlier ones were horribly hot, literally sealing up your head and filling with perspiration...ugh! (My husband would watch me trying to cool down in the ice arena, wondering how anyone could possibly be hot with wind and hair blowing across their face; it was the ultimate warming cap.) BTW, the short blond one in this photo is 11 years old! ((Hugs)) Susan

Comment by Leslie Mader on November 18, 2011 at 10:09pm

thanks Susan- and your hair looks awesome. so that's a Freedom wig? wow, 11 years old! You must have more than one! Tell me more about the wig when you have time and how long you have had alopecia areata or universalis. I checked Ascot Fund and they will only give you $500 towards a wig under $1500 and you have to meet their criteria according to what you make a year.

Comment by Susan Innes on November 19, 2011 at 9:36am

Hi Leslie - As to the wigs, I have several that are regular worn but only 2 vacuums, one bought about a year ago that needs to be cut again. The universalis wasn't until my late 40s, although there were hair problems in the teens. Did I understand correctly that the Ascot Fund is only available on hair pieces that "cost $1500 or less"? That would eliminate some of the real hair pieces that aren't even a vacuum style...sigh.

Comment by Leslie Mader on November 19, 2011 at 8:48pm

Did you have a hard time adjusting the your Freedom wig? I ordered a Gripper wig today by Follea from the stylist that will be styling my Freedom wig. I can't wait. These human hair wigs make me nervous though, especially the custom made from Freedom. So many things to pick out and wanting it to look like you again. I just don't see how that's possible but i have heard nothing but positive on both vacuum and the gripper wigs.
Yes, It's my understanding that they only cover up to $500. It's too bad, but i imagine there are alot of people that can't afford a synthetic barely. It makes me sad and i feel fortunate i can get a vacuum. It's put a pinch on our finances but my husband is so supportive we are making it happen. I think it's the only way for me to finally stop thinking about my hair loss 24/7.

Comment by Susan Innes on November 19, 2011 at 9:33pm

Hi Leslie - Are the Follea wigs quite a bit less expensive? Also, what is the cap lining comprised of and how is it secured to the head?

Comment by Leslie Mader on November 20, 2011 at 1:09pm

They are less than Freedom vacuum wigs. Because they are not custom made you can get one quicker and they are very nice. The stylist I go to said her clients that have the grippers LOVE them. I did find out yeterday that you cannot get the 6" hair anymore from Follea. I don't want to try to explain the cap linings but if you go to their website it would be more helpful than me. they have a "sport" gripper and also a "cool" gripper and I believe these were Peggy Knights designs.

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