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Two week update... good and bad
That's me been using the Dermovate cream for two weeks now.
The good news... on my 2 biggest patches I can see some white fuzzy hair coming through. My wife tells me that the patch on the top of my head has even longer white fuzz (but I can't see it very well). No dark hair yet but I'm keeping everything crossed.
The bad news... I can see the start of 3 possible new patches, 2 of which are really close to the patch on the top of my head. That makes 7 patches on my head now and one on my chin. I only found the 3 new ones last night and ended up in tears and was feeling really really down.
Up until last night, I thought that I was doing really well. I had been feeling a lot better and able to cope with day to day things without dwelling too much on the alopecia. I had even postponed my next visit to the hypnotherapist as I didn't feel that I needed another session yet... that appointment has now been reinstated. The hypnotherapist has been helping me with relaxation (and has been a big help so far).
I have also been to see a holistic health practitioner and have just taken my 3rd weekly dose of tablets. I'm due to see her again in less than 2 weeks time. I don't really understand how it all works but I have to try everything just now. She said that she wouldn't recommend using a steroid cream while taking the holistic treatment as she wouldn't be able to tell what's working and what isn't, but I just can't bring myself to stop using the cream.
I want to get myself back to how I felt up until yesterday. I'm so up and down and am holding myself back from making another appointment with the private dermatologist to ask to get injections in these new patches before they get any bigger. I don't even know if that's possible.
I'm using these blogs as a diary and a place to vent my frustration. I was going to post one on Wednesday which would have been a lot more positive but wanted to wait until I had been using the dermovate cream for 2 weeks. What a difference a day makes with this bl**dy condition. I'm just so down right now.
The good news... on my 2 biggest patches I can see some white fuzzy hair coming through. My wife tells me that the patch on the top of my head has even longer white fuzz (but I can't see it very well). No dark hair yet but I'm keeping everything crossed.
The bad news... I can see the start of 3 possible new patches, 2 of which are really close to the patch on the top of my head. That makes 7 patches on my head now and one on my chin. I only found the 3 new ones last night and ended up in tears and was feeling really really down.
Up until last night, I thought that I was doing really well. I had been feeling a lot better and able to cope with day to day things without dwelling too much on the alopecia. I had even postponed my next visit to the hypnotherapist as I didn't feel that I needed another session yet... that appointment has now been reinstated. The hypnotherapist has been helping me with relaxation (and has been a big help so far).
I have also been to see a holistic health practitioner and have just taken my 3rd weekly dose of tablets. I'm due to see her again in less than 2 weeks time. I don't really understand how it all works but I have to try everything just now. She said that she wouldn't recommend using a steroid cream while taking the holistic treatment as she wouldn't be able to tell what's working and what isn't, but I just can't bring myself to stop using the cream.
I want to get myself back to how I felt up until yesterday. I'm so up and down and am holding myself back from making another appointment with the private dermatologist to ask to get injections in these new patches before they get any bigger. I don't even know if that's possible.
I'm using these blogs as a diary and a place to vent my frustration. I was going to post one on Wednesday which would have been a lot more positive but wanted to wait until I had been using the dermovate cream for 2 weeks. What a difference a day makes with this bl**dy condition. I'm just so down right now.
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Comment by Tallgirl on August 8, 2009 at 12:50pm
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I thought only we females got so down with this. But at least you guys can look dapper in hats. If The Force has meant for you to be one of the "lucky" (ha ha) ones with alopecia, and if The Force has not yet created the person to invent a safe, sure cure, then all we can do is accept the ride as those interim people (between acknowledgement and cure) and go on with the waiting game in the best way we can fashion. And I do mean fashion...because, isn't that what we are really upset about? Fitting in with fashion of a culture? If this were ancient Egypt, or if we were Tibetian monks, we'd fit right in. But here, now, crying won't change what The Force decides, so the quicker we find a style to at least pass with our cultural fashion, the quicker we can lesson the emotional issues. I can "act" blond or redhead now in public, and only have to deal with seeing my grandpa staring back at me in the mirror at home, just before bed. That one minute won't kill me when I have spent a full day looking normal to my workplace, family and community. Just find a solution, any solution, and become the actor. Obviously, your look will differ from the one in your old photos...but hey, most grown men are no longer sporting fu-manchus or hippie long-haired styles anymore, right? Change happens. Shit happens. Creativity can also happen. Get outrageous and have fun with it. If the crowd sees you smiling, it will smile with you. I am female, 56, and the natural me has only had wispy white hairs at sideburns and around front hairline for about 10 years. Get yourself some photos of famous men with hats and shaved heads, and look at their handsome smiles if you need encouragement. Can't wait to see a photo posted of the look you choose.
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Comment by JeffreySF on August 8, 2009 at 2:10pm
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Hi Robert,
Sorry you are feeling down right now. I know how hard it is to be going through this. Alopecia is quite the rollercoaster especially at the begining, Hope you are feeling a little bit better today.
Jeffrey
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