This I just can't figure out?? Why is it I have had to deal with alopecia areata now for almost 17 years, I just recently find this great website with people just like me (have never met anyone else with this condition before), and now in the last two weeks...I now have alopecia universalis? Yes, it's almost all gone now.

Because knowing there are so many people out in this world also dealing with this condition, I feel I'm handling this better then I would have. Don't get me wrong....I'm a little depressed, but I feel that this will definitely help me and to soon now accept this.

Not only by everyone's stories of getting through lifes daily challenges, but by all the caring people I have had the great oportunity to now relate to.
Thank You.....

Views: 63

Comment by Bald and Fabulous AKA Terri on April 10, 2011 at 5:07pm
Welcome Sherri
This site and everyone a part of it truly are a lifesaver. I too only recently found this site after dealing with alopecia for 28 years.
Comment by Jasmine on April 10, 2011 at 11:29pm
The same with me..I ve been dealing with terribly bad hair loss for the past 15 odd years,lost almost one third of my hair and I just found this site about an hour ago.Finally some place were I need not try to cover up my scalp with the scanty hair.For 15 yrs now I ve been hiding it,having people comment about it and pointing out was not exactly understanding.And this was from friends and relatives.When ever I spoke of hair products,a haircut or hair styling they would laugh over it as if it was a big joke and say things like "Ya right for your hair" and stuff like that.Its not like we chose to have this condition.It took a lot of courage to brush it off like it dint matter while deep inside every word about it crippled me and made me feel more conscious.Some times I think I should start wearing a wig,but my husband says that Im perfect just the way I am.He is a true blessing in my life.He never once commented about it;its as if to him I have Rapunzel's hair...Lol.Anyway,its just such a huge relief to have found this wonderful website and all you wonderful people.
Comment by Hope on April 10, 2011 at 11:37pm
Jasmine think about getting a wig. I didn't want one because I felt I was giving up, but now I love wearing it!! I put it on, go on with my day and can completely forget about my hair.
Comment by Jasmine on April 11, 2011 at 12:13am
Well now that its still cold I wear caps and in summer I switch to hats.I will start work probably next year then I will probably get a wig.The problem is that I want a wig which will not look too obvious.Any ideas as to what kind would be the best?I was thing about a lace front with bangs or something so that the hair line wont show and the wig will look as close to natural as I can hope for.Any comments?
Comment by Mary on April 11, 2011 at 3:48pm
Welcome, Sherri! Alopecia World is wonderful!
Comment by Mary on April 11, 2011 at 4:30pm
Yes, Stacy, AW is about sharing tips and stuff. Thank you for sharing. I'd like to believe that this product (or any product!) works, but I feel forced to share my questions:

IF the special formula that Hair Essentials has discovered really DID jump start hair follicles and promote hair growth for people with AA, wouldn't NAAF be all over it? NAAF's main focus is finding a "cure". Surely they'd be jumping on this.

Wouldn't it be front-page news for all types of hair loss?! Think of how BIG the news story was recently about a new drug that grew hair in bald mice...it was HUGE news. This hasn't been in the news.

Here's the bottom line for me - I'm not a scientist, but I know that there is something called "double blind testing" where there is a control group and the experimental group. The control group gets a placebo - a product with no active ingredients. The experimental group gets the drug being tested.

I don't see anything on the Hair Essentials website claiming that they have DONE double blind scientific testing, and I'd bet they haven't. IF this product really has the effects they claim, it would be submitted to rigorous SCIENTIFIC testing and the results would be proven.

But, all that this product has to back it up are the testimonials. There's no scientific evidence, which could be obtained through appropriate double blind testing.

I'm happy if you have had hair growth, but I remain an unbeliever in the face of a lack of testing and proof.

Mary
Comment by Mary on April 11, 2011 at 5:13pm
Glad it works for you. I think you should email NAAF about it - I mean this seriously, not facetiously. Maybe they don't know about it.
Comment by Tamera on April 12, 2011 at 9:33am
Welcome to this wonderful network! I just found this site recently too, and I love it! I love all the people and the insite that it brings to my life almost daily. I have had alopecia for 25 years, and until lately I don't think I have ever talked about it as much as I do now, online and with other people. My husband tells me he can also see what a change AW has made in me, I have reached a whole new level of comfort/acceptance when it comes to my alopecia, I am sure you will find that it will help you too...
Comment by Mary on April 12, 2011 at 10:22am
I've told my husband that AW saved us thousands of dollars on mental health counseling! ( ;-)
Comment by Mary on April 12, 2011 at 5:17pm
Well, good for you for trying! I guess they don't have the money to do the clinical trials (which is what I was talking about) themselves. I know that it's very expensive.

I hope i continues to help you. ( ;-)

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