Alopecia World
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Why does NOBODY know about alopecia?
I have only had alopecia for around a year, but I went from having just a very small bald patch to losing 90% of my hair. I feel that it does not get enough attention in the medical world because every doctor I have gone to has told me (It could be caused by stress, it could be hereditary, it could be caused by this, it could be caused by that, it could be cured by this, it could be cured by that, etc. ......) I am so thankful that my hair loss is not caused because of treatment for cancer and I am so thankful that this condition is not caused by anything that is life-threatening, but I am NOT thankful that there is not more light and research done on this condition.
I feel like there is nobody out there that can give me any kind of definitive answer about Alopecia and people dismiss how mentally degrading this is because it is somewhat of a superficial condition. I am a 20 year old college student and no, my Alopecia is not killing me, but it does affect my life in a BIG way. I am for the most part accepting and okay with my condition but every once in a while I do have a mental breakdown and just want my hair back.
Does anyone else feel like this condition is very wishy-washy and information about it is somewhat unavailable, or am I just being dramatic? ....
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Comment by JenNy on February 16, 2015 at 3:24am
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I completely understand where you're coming from. I absolutely felt the same way with acceptance and the more then occasional mental breakdowns. I feel there isn't enough research being put into this disease because it is deemed as non-life threatening. I battled AA for over 2 years and my hair actually grew all back. I know this isn't the case for everyone but I struggled with deep depression and had so many thoughts of suicide because of AA. I got mad at myself because I felt I was being overly dramatic over something superficial. Alopecia world gave me hope and helped me cope during my time of sorrows. I feel ya girl and the frustration is real.
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Comment by Becca on February 16, 2015 at 7:28am
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I feel the same way! I am 16 and in my last year of high school and it's really tough.
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I agree. My daughter has AA and we have been to 5 doctors, all of which have been pretty clueless. It is a frustrating condition that nobody seems to know about. The most helpful doctors have been an integrative doctor and her new naturopath, who is focusing on getting to the root of her issue.
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Yes I feel the same way and while we do not have cancer it is a very traumatic disease. I have come to accept that I am bald and my hair may never grow back but by God did I go through some horrible horrible times coming to terms with it. I hate when people who have a full head of hair say at least it is not cancer it could be worse and yes I know it could be but people please understand how difficult it is to face people being bald. I hate the fact that all the doctors say there is no cause or cure. I heard that the reason they do not put finance towards the investigation of causes for alopecia is because it is not a serious illness but people should realise how horrific the depression can be when you have it.
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Agree Caroline! It has been tough on our entire family. I believe whole heartedly that Alopecia can be cured. There is some imbalance that causes this and I cling to the hope that it can be corrected/reversed. Believing in this keeps me sane....
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It is not life threatening so doctors don't see it as something that bad. Also lately it has been getting more media attention cause they have finally found the gene responsible for causing alopecia JAK inhibitors
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Comment by Rach1992 on March 16, 2015 at 1:34am
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I understand 100%. It seems like no one knows what it is! That's why this site is so amazing. I got it last May, so I understand where you are coming from. It's new to me too!
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